Carers Knowledge Exchange
Search
Close
Important information
Log In Subscribe for updates
  • Home
  • About
  • Research Library
  • Get Involved
  • Support for carers
  • My Research
  • Carer Hub
  • Home
  • About
  • Research Library
  • Get Involved
  • Support for carers
  • My Research
  • Carer Hub
Log In Subscribe for updates

<< Back to Results

  • Search

Dementia as social experience

Published Date: 27.7.2018

View Publication

Theme: Specific groups of carers

Sub-theme: Caring for someone with dementia

Dementia Interdisciplinary Lived experience Book Stigma

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Specific groups of carers

Sub-theme: Caring for someone with dementia

View Publication Dementia Interdisciplinary Lived experience Book Stigma

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Dementia as social experience

Published Date: 27.7.2018

  • Author/ Authors

    Gaynor Macdonald, Jane Mears

  • Suggested citation (APA 7th edition)

    Macdonald, G., & Mears, J. (2019). Dementia as social experience: Valuing life and care (1st ed., Vol. 1). Routledge. https://doi.org/10.4324/9781351241816

Long Summary

This book explores the lived experience of those who care for someone with dementia, including the stigma and language associated with dementia, best practices for long-term outcomes for those living with dementia, and the relational aspect of caring for someone with dementia.

    Key Messages for Carers


  • Acknowledges the impact that a diagnosis of dementia has on carers
  • Provides proactive practices that may support better long-term outcomes for those living with dementia
  • Advocates for social change to enhance the lives of those who care for individuals with dementia

  • Key Messages for Policy Makers


  • Brings together a range of disciplines to explore dementia from the perspective of lived experience
  • Provides insight to researchers and policy makers regarding the lived experience of caring for an individual with dementia
  • Calls for social change to reframe the experiences of those caring for individuals with dementia

Related Publications

  • Ask a neuroscientist

    Lezanne Ooi

    View
  • The Nightingale Program

    Jayne Littledike , Alison Davis

    View
  • Care factor

    Kristine Rawlinson , Sara James

    View
  • Interventions to support carers of people with dementia

    Steering Committee for the Review of Government Service Provision

    View
  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

  • About
  • Subscribe for updates
  • Support for carers

  • Research Library
  • My Research
  • Submission guidelines

  • Contact us
  • Upcoming events
  • Frequently asked questions

Follow us on social media

  • Privacy Policy
  • Disclaimer
  • Terms & conditions
The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.