Carers Knowledge Exchange
Search
Close
Important information
Log In Subscribe for updates
  • Home
  • About
  • Research Library
  • Get Involved
  • Support for carers
  • My Research
  • Carer Hub
  • Home
  • About
  • Research Library
  • Get Involved
  • Support for carers
  • My Research
  • Carer Hub
Log In Subscribe for updates

Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

View all publications

Search for a resource

  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

Your Results

Filter my Results

Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Dementia
Clear all

Your search has returned 54 results

  • Relationships and community, Family relationships

    9.4.2019

    Engaging the person with young-onset dementia

    Imelda Gilmore

    This article shares first-hand the lived experience of Imelda Gilmore who cared for her husband with young-onset Alzheimer’s disease.

    Dementia Carer recognition Lived experience Younger onset dementia Open access Peer-reviewed journal article Case study
    View
  • Service systems, Disability services

    24.9.2018

    Exploring the whole family experience living with younger onset dementia from a social model perspective

    Karen Hutchinson

    This research responds to gaps in understanding of people’s experiences of early onset dementia from a social model perspective.

    Dementia Disability Carer support Open access Thesis Qualitative data
    View
  • Specific groups of carers, Caring for someone with dementia

    9.4.2019

    Supporting people with young-onset dementia and their family carers better

    Lee-Fay Low

    This article utilises an extended case study to explore gaps in service provider support for those with young-onset dementia and their carers.

    Dementia Alzheimer’s Respite Open access Peer-reviewed journal article Case study
    View
  • Service systems, Health care services

    30.1.2019

    What would I want?

    Irja Haapala, Ashley Carr, Simon Biggs

    This article draws on data from people with dementia, their carers and support service professionals to assess public health campaigns for dementia.

    Dementia Lived experience Open access Peer-reviewed journal article Qualitative study
    View
  • Service systems, Health care services

    20.4.2021

    Ask a neuroscientist

    Lezanne Ooi

    An easy to read four-part series on dementia, focusing on providing basic information about the condition and its progression from the perspective of a neuroscientist.

    Alzheimer’s Dementia 5 minute read Research
    View
  • Specific groups of carers, Caring for someone at the end of life

    19.10.2020

    The Nightingale Program

    Jayne Littledike, Alison Davis

    This article details the Dementia Australia Nightingale Program, a nurse-led model of care for people with dementia specialising in palliative care.

    Dementia End of life care Palliative care
    View
  • Specific groups of carers, Caring for someone with dementia

    1.10.2018

    Interventions to support carers of people with dementia

    Steering Committee for the Review of Government Service Provision

    This review considers what works to support those caring for people with Dementia and explores the effectiveness of different intervention techniques to prolong a carer's capacity to maintain care.

    Dementia Carer wellbeing Carer recognition Home care Review Qualitative study
    View
  • Specific groups of carers, Caring for someone with dementia

    11.1.2018

    I just can't please them all and stay sane

    Gemma Tatangelo, Marita McCabe, Ashley Macleod, Anastasia Konis

    Examining the relationship between family dynamics and adult child caregiver distress, this study seeks to better understand the experience of caring for an older relative with dementia and address problematic family dynamics in the caring context.

    Dementia Family Qualitative data Children and young people Family caregivers Peer-reviewed journal article Qualitative study
    View
  • Service systems, Respite services

    10.11.2020

    Rethinking respite in Australia

    Lyn Phillipson, Keryn Johnson, Elaine Fielding, Elizabeth Cridland, Danika Hall, Christine Neville, Helen Hasan

    This article explores ways in which uptake of respite services can be improved among carers of people with dementia and reveals that more active support is needed to address carer decline, as opposed to passive respite information, which is often insufficient.

    Respite Dementia Carer burden Peer-reviewed journal article Evaluation Survey
    View
  • Specific groups of carers, Caring for someone with dementia

    4.12.2014

    Social participation and family carers of people living with dementia in Australia

    Rhonda Nay, Michael Bauer, Deirdre Fetherstonhaugh, Wendy Moyle, Laura Tarzia, Linda McAuliffe

    This article explores how caring for a person living with dementia can affect the carers ability to participate in social engagement.

    Dementia Family caregivers Social connectedness Peer-reviewed journal article Qualitative study
    View
  • Specific groups of carers, Caring for someone with dementia

    10.4.2018

    A person-centred approach to family carer needs assessment and support in dementia community care in Western Australia

    Samar Aoun, Chris Toye, Susan Slatyer, Andrew Robinson, Elizabeth Beattie

    This study identifies the support needs of informal carers of people living with dementia through conducting qualitative research.

    Dementia Family caregivers Qualitative data Carer burden Carer support Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone with dementia

    18.1.2018

    Caring for a family member or friend with dementia at the end of life

    Timothy Broady, Freya Saich, Tom Hinton

    This article explores the experiences of carers who are providing end-of-life care to a family member or friend with dementia.

    End of life care Dementia Peer-reviewed journal article Palliative care Scoping review
    View
  1. Page 1
  2. Page 2
  3. Page 3
  4. Page 4
  5. Page 5
  • You're on page Current Page 1 of 5
    • Page 1
    • Page 2
    • Page 3
    • Page 4
    • Page 5

  • About
  • Subscribe for updates
  • Support for carers

  • Research Library
  • My Research
  • Submission guidelines

  • Contact us
  • Upcoming events
  • Frequently asked questions

Follow us on social media

  • Privacy Policy
  • Disclaimer
  • Terms & conditions
The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.