Carers Knowledge Exchange
Search
Close
Important information
Log In Subscribe for updates
  • Home
  • About
  • Research Library
  • Get Involved
  • Support for carers
  • My Research
  • Discussion Forum
  • Carer Hub
  • Home
  • About
  • Research Library
  • Get Involved
  • Support for carers
  • My Research
  • Discussion Forum
  • Carer Hub
Log In Subscribe for updates

<< Back to Results

  • Search

Lifetime active care

A qualitative study of long-term family carers of people with spinal cord injury in Australia

Published Date: 1.4.2020

View Publication

Theme: Carer health and wellbeing

Sub-theme: Mental health

Long-term carers Physical health Carer wellbeing Spinal cord injury Peer-reviewed journal article

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Carer health and wellbeing

Sub-theme: Mental health

View Publication Long-term carers Physical health Carer wellbeing Spinal cord injury Peer-reviewed journal article

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Lifetime active care

A qualitative study of long-term family carers of people with spinal cord injury in Australia

Published Date: 1.4.2020

  • Author/ Authors

    Laynie Hall Pullin, Heather McKenzie

  • Suggested citation (APA 7th edition)

    Pullin, L. & McKenzie, H. (2020). Lifetime Active Care: A qualitative study of long‐term family carers of people with spinal cord injury in Australia. Health & Social Care in the Community, 28(5), 1622–1631. https://doi.org/10.1111/hsc.12987

Long Summary

This article uses qualitative methods to explores the experiences of life-long carers caring for people with spinal cord injuries. The study reveals a number of themes including how complex and all-consuming the role of a carer can be, the long-term impact of caring, and the importance of carer health and wellbeing.

    Key Messages for Carers


  • Highlights how carers voices and experiences can be used in research
  • Outlines expectations for people who care for a person with a spinal cord injury
  • Emphasises importance of carer health and wellbeing

  • Key Messages for Policy Makers


  • Provides an outline of the experiences of long-term caring
  • Provides information specific to the experiences of caring for a person with a spinal cord injury
  • Discusses the adverse effects that caring has long-term on carers and their families

Related Publications

  • Young carers in Australia

    Lukas Hofstaetter , Isaac Yeboah Addo , Sienna Aguilar , Abner Weng Cheong Poon

    View
  • (How) Will it end?

    Lukas Hofstaetter , Emma Kirby , Giselle Newton , Iva Strnadova , Christy E. Newman

    View
  • Income support for Australian carers since 1983

    Yvette Maker , Dina Bowman

    View
  • Interventions to support carers of people with dementia

    Steering Committee for the Review of Government Service Provision

    View
  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

  • About
  • Subscribe for updates
  • Support for carers

  • Research Library
  • My Research
  • Submission guidelines

  • Contact us
  • Upcoming events
  • Frequently asked questions

Follow us on social media

  • Privacy Policy
  • Disclaimer
  • Terms & conditions
The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.