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Rethinking respite in Australia

A naturalistic effect study of a multicomponent community program to promote respite knowledge, attitudes and behaviours of carers of people with dementia

Published Date: 10.11.2020

View Publication

Theme: Service systems

Sub-theme: Respite services

Respite Dementia Carer burden Peer-reviewed journal article

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Service systems

Sub-theme: Respite services

View Publication Respite Dementia Carer burden Peer-reviewed journal article

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Rethinking respite in Australia

A naturalistic effect study of a multicomponent community program to promote respite knowledge, attitudes and behaviours of carers of people with dementia

Published Date: 10.11.2020

  • Author/ Authors

    Lyn Phillipson, Keryn Johnson, Elaine Fielding, Elizabeth Cridland, Danika Hall, Christine Neville, Helen Hasan

  • Suggested citation (APA 7th edition)

    Phillipson, L., Johnson, K., Fielding, E., Cridland, E., Hall, D., Neville, C., & Hasan, H. (2021). Rethinking respite in Australia: A naturalistic effect study of a multicomponent community program to promote respite knowledge, attitudes and behaviours of carers of people with dementia. Health & Social Care in the Community, 29(5), 1566–1583. https://doi.org/10.1111/hsc.13223

Long Summary

This article explores ways in which uptake of respite services can be improved among carers of people with dementia. The intervention included an option to participate in a tailored one-on-one in-home coaching program, carer education sessions, access to web and print respite information, and carer education sessions. The study revealed that individuals who self-selected to receive active support experienced an increase in intention to use respite and an increase in their personal gain from caring. However, carers who only participated in the educational aspect of the program experienced negative changes to their beliefs about respite. This study revealed that more active support is needed to address carer decline, as opposed to passive respite information, which is often insufficient.

    Key Messages for Carers


  • Demonstrates how carers can make use of resources and supports available to them
  • Explores the knowledge and skills that may be relevant when seeking respite for carers of people with dementia

  • Key Messages for Policy Makers


  • Passive educational strategies and respite information is often insufficient for carers
  • Active supports such as tailored respite coaching may help to address carer decline
  • Fundamental changes in the system are required to address the relationship between respite and carer decline

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.