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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Disability
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Your search has returned 62 results

  • Recognition and inclusion, Carer recognition

    11.7.2019

    Claiming rights

    Kathryn Knight, Laura Davy

    This article explores the importance of meaningful recognition and inclusion of carers in their own right.

    Carer rights Carer support Financial wellbeing Disability Peer-reviewed journal article Open access
    View
  • Service systems, Service changes

    1.6.2017

    Collateral damage

    Ara Cresswell

    This journal article examines the broad sector reforms within disability and aged care and their subsequent impact on carer support.

    Disability services Social welfare Carer support Support services NDIS Peer-reviewed journal article Open access
    View
  • Service systems, Disability services

    24.9.2018

    Exploring the whole family experience living with younger onset dementia from a social model perspective

    Karen Hutchinson

    This research responds to gaps in understanding of people’s experiences of early onset dementia from a social model perspective.

    Dementia Disability Carer support Open access Thesis
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    1.5.2011

    Indigenous carers

    Bettina Cass, BJ Newton, Kylie Valentine, Trish Hill

    This report provides an in-depth analysis of caring that examines experiences with support services for Indigenous and non-Indigenous carers. The report emphasises the need for more targeted research on numerous facets of Indigenous carer experiences and needs.

    Aboriginal and Torres Strait Islander Disability Ageing Hidden carers Report
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    12.8.2018

    Interacting with providers

    Anna Green, Penelope Abbott, Patricia M. Davidson, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Michelle DiGiacomo

    New research into Aboriginal carers’ experiences of accessing services and support for their child with a disability indicates a lack of cultural awareness and the presence of racism, with the authors arguing that a community-led approach can help counter intersectional oppression.

    Aboriginal and Torres Strait Islander Children and young people Disability Health care services Qualitative data Lived experience Open access Peer-reviewed journal article
    View
  • Service systems, Disability services

    1.11.2018

    Underpricing care

    Natasha Cortis, Fiona Macdonald, Bob Davidson, Eleanor Bentham

    This article explores the role of NDIS pricing as a mechanism to manage the market model of care, and how low prices contribute to the undervaluing of care.

    NDIS Policy Disability services Peer-reviewed journal article Open access
    View
  • Service systems, Disability services

    22.12.2016

    What is a person-centred approach?

    Timothy Broady

    This article reviews the person-centred approach to care within the disability sector in NSW.

    Disability services Carer recognition Carer education Person-centred Peer-reviewed journal article
    View
  • Specific groups of carers, Rural and regional carers

    17.10.2016

    Access to therapy services for people with disability in rural Australia

    Gisselle Gallego, Michelle Lincoln, Anita Bundy, Rebecca Jean Chedid, Kim Bulkeley, Jennie Brentnall, Craig Veitch, Angela Dew

    This article examines the disadvantages faced by carers in rural areas that can impact both the carer and care recipients abilities to access support and health services.

    Rural and regional Health care services Peer-reviewed journal article
    View
  • Specific groups of carers, Rural and regional carers

    24.1.2018

    Carers' preferences for the delivery of therapy services for people with disability in rural Australia

    Gisselle Gallego, Angela Dew, Anita Bundy, Kim Bulkeley, Jennie Brentnall, Craig Veitch

    This study used a survey to better understand the needs and preferences of carers and care recipients regarding the delivery of therapy services.

    Rural and regional NDIS Quantitative data Support services Mental health services Peer-reviewed journal article
    View
  • Service systems, Disability services

    30.8.2021

    Carers’ experiences of the National Disability Insurance Scheme workforce

    John Hurley, Marie Hutchinson

    This study used qualitative research methods to gain insight into carer experiences of engaging with the NDIS.

    NDIS Qualitative data Support services Rural and regional Carer support Peer-reviewed journal article
    View
  • Income and paid work, Support at work

    22.12.2016

    The experience of sole mothers balancing paid work with care for a child with a disability

    Lindsay Cole, Angela Crettenden, Rachel Roberts, Annemarie Wright

    This article explores the experiences of sole mothers who care for a child with a disability with a particular focus on how this role impacts their ability to participate in paid work.

    Workforce participation Employment Children with disabilities Single parent families Peer-reviewed journal article
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    23.12.2019

    Importance of land, family and culture for a good life

    Angela Dew, Rebecca Barton, John Gilroy, Lee Ryall, Michelle Lincoln, Heather Jensen, Vicki Flood, Kerry Taylor, Kim McCrae

    This paper highlights the importance of Land, family, culture and working and sharing together, to enable Aboriginal people with a disability to live a good life.

    Aboriginal and Torres Strait Islander Culture Disability Peer-reviewed journal article
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.