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Exploring the whole family experience living with younger onset dementia from a social model perspective

Published Date: 24.9.2018

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Theme: Service systems

Sub-theme: Disability services

Dementia Disability Carer support Open access Thesis

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Service systems

Sub-theme: Disability services

View Publication Dementia Disability Carer support Open access Thesis

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Exploring the whole family experience living with younger onset dementia from a social model perspective

Published Date: 24.9.2018

  • Author/ Authors

    Karen Hutchinson

  • Suggested citation (APA 7th edition)

    Hutchinson, K. (2018). Exploring the whole family experience living with younger onset dementia from a social model perspective [PhD thesis, The University of Sydney]. University of Sydney Library. https://ses.library.usyd.edu.au/handle/2123/18936

Long Summary

This thesis provides a unique analytic perspective by exploring the experiences of people with early onset dementia from a whole family perspective, including family and friend carers. Through an analysis of new data, this research applies the social model to the dementia sector, a hereunto gap in the research field.

    Key Messages for Carers


  • Provides an example of conducting carer-inclusive research to ensure initiatives are sensitive to care experiences and needs
  • Offers insights into how a social model can include and support carers
  • Provides an example of involving carers in research

  • Key Messages for Policy Makers


  • Offers recommendations for improving service delivery for participants and their carers
  • Provides an example of conducting research to inform the development of carer-inclusive initiatives

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.