Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 32 results
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22.1.2018
Australian family carer responses when a loved one receives a diagnosis of Motor Neurone Disease
Margaret O'Connor, Samar Aoun, Lauren Breen
This paper describes the qualitative data from a large Australian survey of family carers of people with MND, to ascertain their experiences of receiving the diagnosis.
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11.1.2018
I just can't please them all and stay sane
Gemma Tatangelo, Marita McCabe, Ashley Macleod, Anastasia Konis
Examining the relationship between family dynamics and adult child caregiver distress, this study seeks to better understand the experience of caring for an older relative with dementia and address problematic family dynamics in the caring context.
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4.12.2014
Social participation and family carers of people living with dementia in Australia
Rhonda Nay, Michael Bauer, Deirdre Fetherstonhaugh, Wendy Moyle, Laura Tarzia, Linda McAuliffe
This article explores how caring for a person living with dementia can affect the carers ability to participate in social engagement.
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10.4.2018
A person-centred approach to family carer needs assessment and support in dementia community care in Western Australia
Samar Aoun, Chris Toye, Susan Slatyer, Andrew Robinson, Elizabeth Beattie
This study identifies the support needs of informal carers of people living with dementia through conducting qualitative research.
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4.8.2017
Implementing a multi-modal support service model for the family caregivers of persons with age-related macular degeneration
Bamini Gopinath, Ashley Craig, Annette Kifley, Gerald Liew, Jaye Bloffwitch, Kim Van Vu, Nichole Joachim, Robert Cummins, Julie Heraghty, Timothy Broady, Alison Hayes, Paul Mitchell
This study investigated the experiences of individuals who care for persons with age-related macular degeneration and the need to provide tailored support to these carers.
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7.12.2020
'Absent voices'
Karen Hutchinson, Frances Rapport, Geoffrey Herkes, Andrew Bleasel, Armin Nikpour, Chong Wong, Carol Ireland, Lukas Hofstaetter, Sanjyot Vagholkar, Stephanie Kain, Tayhla Ryder, Jeffrey Braithwaite
This article explores the experiences of those living with parental refractory epilepsy and their family members in order to address current evidence-gaps in research.