Carers Knowledge Exchange
Search
Close
Important information
Log In Subscribe for updates
  • Home
  • About
  • Research Library
  • Get Involved
  • Support for carers
  • My Research
  • Carer Hub
  • Home
  • About
  • Research Library
  • Get Involved
  • Support for carers
  • My Research
  • Carer Hub
Log In Subscribe for updates

Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

View all publications

Search for a resource

  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

Your Results

Filter my Results

Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Focus group
Clear all

Your search has returned 14 results

  • Specific groups of carers, Caring for someone with a brain injury

    1.1.2022

    Coproducing knowledge of the implementation of complex digital health interventions for adults with acquired brain injury and their communication partners

    Melissa Miao, Emma Power, Rachael Rietdijk, Deborah Debono, Melissa Brunner, Alexander Salomon, Ben Mcculloch, Meg Rebecca Wright, Monica Welsh, Bastian Tremblay, Caleb Rixon, Liz Williams, Rosemary Morrow, Jean-Christophe Evain, Leanne Togher

    This preliminary study provides a report on the outcome of research undertaken for the Social Brain Toolkit, a novel suite of web-based communication interventions for people with brain injury and their communication partners.

    Brain injury Carer support Peer-reviewed journal article Open access Focus group Quantitative data
    View
  • Recognition and inclusion, Carer recognition

    8.1.2020

    Gendered moral rationalities in later life

    Myra Hamilton, Bridget Suthersan

    This article explores the experiences of grandparents who often play an important role in child-care for families whilst simultaneously engaging in paid employment.

    Grandparents Employment Gender Open access Peer-reviewed journal article Survey Focus group
    View
  • Specific groups of carers, Young carers

    1.6.2020

    Young carers research project

    Carers NSW

    This research project aimed to establish evidence regarding how to better support the needs and experiences of young carers.

    Young carers Research Hidden carers Summary report Focus group Qualitative data
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    1.8.2018

    Focus groups with culturally and linguistically diverse carers in NSW

    Carers NSW

    This report reveals the findings of six focus groups which explored the experiences and needs of carers from CALD communities.

    CALD Focus group Participatory research Open access
    View
  • Specific groups of carers, Young carers

    2.6.2010

    Children and young people as active agents in care-giving

    Ciara Smyth, Bettina Cass, Trish Hill

    This article provides an analysis of literature and primary research regarding young people who are informal carers.

    Young carers Education Flexible work Hidden carers Peer-reviewed journal article Focus group Survey
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    19.8.2013

    ‘Doing the hard yards’

    Michelle DiGiacomo, Patricia Delaney, Penelope Abbott, Patricia M. Davidson, Joanne Delaney, Frank Vincent

    This article analyses the experiences of carers of Aboriginal children accessing disability services.

    Disability services Aboriginal and Torres Strait Islander Children with disabilities Peer-reviewed journal article Open access Focus group
    View
  • Developing skills and knowledge, Caring skills

    16.12.2010

    The caregiving role following percutaneous coronary intervention

    John Rolley, Janice Smith, Michelle DiGiacomo, Yenna Salamonson, Patricia M. Davidson

    This article looks at the experiences of caregivers of individuals who have had percutaneous coronary intervention.

    Carer wellbeing Percutaneous coronary intervention Peer-reviewed journal article Thematic analysis Focus group
    View
  • Specific groups of carers, Caring for someone with cancer

    1.10.2021

    Codesigning a supportive online resource for Australian cancer carers

    Sharnel Miriam Perera, Clare O’Callaghan, Olinda Santin, Cassandra Beer, G Prue, Katherine Lane, Gerard G Hanna, Penelope Schofield, Anna Ugalde

    This study aimed to assist in the co-design process of creating a website to provide information and support to cancer carers in Australia by collecting data on carers' experiences and perspectives.

    Cancer Carer needs Health care Focus group Survey Qualitative data
    View
  • Specific groups of carers, Caring for someone at the end of life

    12.11.2020

    Identity and the end-of-life story

    Rosemary Leonard, Debbie Horsfall, Kerrie Noonan, John Rosenberg

    This study considers the role of psychologists in the Caring at End‐of‐Life Research Program, which has identified the support required for people to die at home.

    End of life care Carer identity Mental health Peer-reviewed journal article Qualitative study Focus group
    View
  • Specific groups of carers, Caring for someone with dementia

    2.10.2017

    What do children need to know about dementia?

    Jess R. Baker, Yun-Hee Jeon, Belinda Goodenough , Lee-Fay Low, Christine Bryden, Karen Hutchinson, Laura Richards

    This study explored the kind of messaging and content required for a dementia education program for children.

    Children and young people Dementia Lived experience Peer-reviewed journal article Qualitative data Focus group
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    3.5.2013

    Carer and service providers' experiences of individual funding models for children with a disability in rural and remote areas

    Angela Dew, Kim Bulkeley, Craig Veitch, Anita Bundy, Michelle Lincoln, Jennie Brentnall, Gisselle Gallego, Scott Griffiths

    This article explores the experiences of carers and services providers with individual funding models for children with a disability living in rural and remote areas.

    Children and young people Disability services Rural and regional Peer-reviewed journal article Focus group Qualitative study Thematic analysis
    View
  • Planning and transitions, Making decisions

    27.5.2014

    Rural carers of people with disabilities

    Angela Dew, Vicki Happ, Kim Bulkeley, Anita Bundy, Michelle Lincoln, Gisselle Gallego, Jennie Brentnall, Craig Veitch

    This study explores a decision that rural carers often face: whether to move to a larger metropolitan centre to access support services or to remain living in a rural area.

    Rural and regional Disability Open access Peer-reviewed journal article Thematic analysis Focus group Qualitative study
    View
  1. Page 1
  2. Page 2
  • You're on page Current Page 1 of 2
    • Page 1
    • Page 2

  • About
  • Subscribe for updates
  • Support for carers

  • Research Library
  • My Research
  • Submission guidelines

  • Contact us
  • Upcoming events
  • Frequently asked questions

Follow us on social media

  • Privacy Policy
  • Disclaimer
  • Terms & conditions
The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.