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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Health care
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Your search has returned 45 results

  • Recognition and inclusion, Carer recognition

    1.11.2019

    Improving the identification of cancer patients’ caring relationships

    Sian White, Natalie Hart, Suzanne Lewis

    This article outlines the findings of a literature review and environmental scan of barriers to carer identification for cancer inpatients.

    Health care services Carer recognition Open access Peer-reviewed journal article
    View
  • Carer health and wellbeing, Physical health

    8.3.2019

    Health of carers of young people with early psychosis

    Abner Weng Cheong Poon, Jackie Curtis, Ann Howard, Philip Ward, Julia Lappin

    This research demonstrates the importance of a biopsychosocial approach to supporting the carers of mental health service users, to improve health and wellbeing outcomes for both client and carer.

    Health Mental health carers Mental health services Children and young people Peer-reviewed journal article
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    12.8.2018

    Interacting with providers

    Anna Green, Penelope Abbott, Patricia M. Davidson, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Michelle DiGiacomo

    New research into Aboriginal carers’ experiences of accessing services and support for their child with a disability indicates a lack of cultural awareness and the presence of racism, with the authors arguing that a community-led approach can help counter intersectional oppression.

    Aboriginal and Torres Strait Islander Children and young people Disability Health care services Qualitative data Lived experience Open access Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone living with a mental illness

    3.9.2011

    Primary caregivers’ satisfaction with clinicians’ response to them as informal carers of young people with first-episode psychosis

    Terence V McCann, Dan I Lubman, Eileen Clark

    This article aims to explore carers’ experiences of mental health nurses and other mental health clinicians in regard to how they respond to them as carers of young people with first-episode psychosis.

    Qualitative data Mental health carers First-episode psychosis Children and young people Peer-reviewed journal article
    View
  • Specific groups of carers, Rural and regional carers

    17.10.2016

    Access to therapy services for people with disability in rural Australia

    Gisselle Gallego, Michelle Lincoln, Anita Bundy, Rebecca Jean Chedid, Kim Bulkeley, Jennie Brentnall, Craig Veitch, Angela Dew

    This article examines the disadvantages faced by carers in rural areas that can impact both the carer and care recipients abilities to access support and health services.

    Rural and regional Health care services Peer-reviewed journal article
    View
  • Carer health and wellbeing, Mental health

    2.1.2013

    I feel your pain

    Carol T. Kulik, Christina Cregan, Hugh Bainbridge

    This article explores the experiences of people with disabilities in the workplace, and the subsequent impact on both the care recipient’s and carer’s psychological wellbeing

    Mental health carers Work and care Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone living with a mental illness

    14.9.2020

    Family involvement to support cardiovascular self-management care for people with severe mental illness

    Sara Zabeen, Delphine Phua, Leila Mohammadi, Sharon Lawn

    This research explores what caregiving strategies work and don’t work when family members support cardiovascular self-management in people living with severe mental illness.

    Mental illness Mental health carers Cardiovascular health Peer-reviewed journal article Open access
    View
  • Specific groups of carers, Caring for someone living with a mental illness

    23.8.2020

    On loneliness

    Sharon Lawn

    This is a first person account from the perspective of a family carer for someone living with mental illness, writing about their own loneliness amidst their care and busy life.

    Carer burden Mental health carers Carer wellbeing Loneliness Open access Peer-reviewed journal article
    View
  • Carer health and wellbeing, Mental health

    30.6.2015

    “How can I take a break?”

    Timothy Broady, Katherine Stone

    This article focuses on the experiences of carers who care for care recipients with mental health issues. The study found that carers of people with mental health suffered poor mental health themselves.

    Mental health carers Mental health Wellbeing Support services
    View
  • Caring and society, Carer statistics

    11.10.2020

    2020 National Carer Survey

    Carers NSW

    This summary report outlines key findings from the 2020 National Carer Survey, conducted by Carers NSW with the support of the State and Territory Carer Organisations.

    Carer support Financial stress Employment Wellbeing Health Health care services Disability services Mental health services Aged care Carer recognition Survey
    View
  • Carer health and wellbeing, Mental health

    5.2.2016

    A longitudinal population-based study of carers of people with psychosis

    Abner Weng Cheong Poon, Carol Harvey, Andrew Mackinnon, Lynette Joubert

    This study aimed to investigate the health and wellbeing of carers of people with psychosis.

    Psychosis Mental health carers Longitudinal Peer-reviewed journal article
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    9.5.2019

    Carers of people with mental illness from culturally and linguistically diverse communities

    Abner Weng Cheong Poon, Jung-Sook Lee

    This article looks at the experiences of carers of people with mental illnesses from culturally and linguistically diverse (CALD) communities.

    Mental health carers Wellbeing Migrants Family Cultural Responsiveness CALD Peer-reviewed journal article
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.