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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Literature review
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Your search has returned 18 results

  • Recognition and inclusion, Carer recognition

    1.11.2019

    Improving the identification of cancer patients’ caring relationships

    Sian White, Natalie Hart, Suzanne Lewis

    This article outlines the findings of a literature review and environmental scan of barriers to carer identification for cancer inpatients.

    Health care services Carer recognition Open access Peer-reviewed journal article Literature review
    View
  • Relationships and community, Social connection

    1.1.2019

    Understanding the social and emotional needs of carers

    Trish Hill, Timothy Broady

    This review provides an overview of key findings in the literature about ‘what works’ or effective programs to improve the social and emotional wellbeing of carers.

    Social connectedness Social networks Literature review Qualitative study
    View
  • Caring and society, Social value of caring

    22.12.2016

    Exploring social care

    Bettina Cass

    This article focuses on young carers and grandparent carers through introducing the concept of "social care".

    Grandparents Young carers Peer-reviewed journal article Case study Literature review
    View
  • Income and paid work, Retirement and superannuation

    30.8.2016

    Recognising unpaid care in private pension schemes

    Myra Hamilton, Cathy Thomson

    This article explores the inequality that many carers face regarding their retirement income due to an often interrupted workforce history.

    Retirement Private pension schemes Financial literacy Financial wellbeing Open access Peer-reviewed journal article Literature review
    View
  • Specific groups of carers, Caring for someone at the end of life

    16.7.2012

    A social capital framework for palliative care

    Joanne M. Lewis, Michelle DiGiacomo, Tim Luckett, Patricia M. Davidson, David C. Currow

    This article looks at the way in which social relationships positively impact the health and wellbeing of people living with a terminal illness.

    Palliative care Carer wellbeing Relationships Peer-reviewed journal article Open access Literature review
    View
  • Carer health and wellbeing, Physical health

    28.11.2020

    Scoping review of family interventions that support the physical health of caregivers

    Abner Weng Cheong Poon, Julia Lappin, Alyssa Cassidy, Jan Breckenridge

    This article looks at the uses of family-based intervention in the context of the physical health of carers through the analysis of literature.

    Mental health Physical health Literature review Family interventions Peer-reviewed journal article Scoping review
    View
  • Carer health and wellbeing, Wellbeing programs

    1.9.2018

    Carer wellbeing and supports

    Ronald Woods, Susan McCormick

    This literature review provides insights into research and debate on key priority areas within the NSW Carer Strategy 2014-2019.

    Wellbeing Health Carer support Carer recognition Literature review
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.7.2020

    COVID-19 and carers

    Carers NSW

    The COVID-19 pandemic has resulted in social and economic challenges for carers including increased caring responsibilities and mental health stressors as well as reduced access to services and ability to partake in employment and education.

    COVID-19 Pandemic Carer wellbeing Literature review 10 minute read
    View
  • Carer health and wellbeing, Mental health

    1.11.2011

    Supporting informal caregivers of people with advanced cancer

    Anna Ugalde, Meinir Krishnasamy, Penelope Schofield

    This study explored how services can best support carers of people with advanced cancer.

    Cancer Carer support Carer support sector Peer-reviewed journal article Literature review
    View
  • Planning and transitions, Planning for the future

    5.4.2023

    Higher education decision making of Australian women with caring responsibilities

    Deborah Munro, Jill Willis, Andrew Gibson, Melinda Laundon

    This paper researched how caring responsibilities may influence how Australian women make decisions about tertiary education.

    Higher education Women Carer education Literature review
    View
  • Service systems, Aged care services

    1.4.2024

    Literature review on the abuse, neglect, and exploitation of adults with disability and older people by carers

    Timothy Broady, Catherine Thomson, Ilan Katz, Sarah Judd-Lam

    This literature review discusses the risk factors involved with neglect, abuse, and exploitation of older people and adults with disability.

    Elder abuse Carer burden Disability Literature review
    View
  • Income and paid work, Support at work

    1.3.2024

    Literature review for the Modern Awards Review 2023-24

    Meg Smith, Sara Charlesworth , Western Sydney University

    This literature review looks at research on modern awards and workplace relations and how this impacts on employees' work and care responsibilities.

    Work and care Gender inequality Employment Literature review
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.