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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Longitudinal
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Your search has returned 19 results

  • Service systems, Service changes

    22.12.2016

    The impact of caring on informal carers' employment, income and earnings

    Michael Bittman, Trish Hill, Cathy Thomson

    Noting the gradual shift from institutionalised forms of health and aged care into the home and community, this paper examines the effect on family and friend carers who are required to balance employment with emerging care responsibilities.

    Financial hardship Employment Financial wellbeing Peer-reviewed journal article Longitudinal Quantitative data
    View
  • Specific groups of carers, Caring for someone living with a mental illness

    15.12.2017

    Perceived needs of carers of people with psychosis

    Abner Weng Cheong Poon, Lynette Joubert, Carol Harvey

    This article takes a deeper look at the needs of carers for people with psychosis based on a series of semi-structured interviews with 98 carers recruited in the Australian prevalence study of psychosis.

    Psychosis Carer recognition Policy Carer needs Peer-reviewed journal article Quantitative data Qualitative data Longitudinal
    View
  • Specific groups of carers, Caring for someone with cancer

    3.9.2012

    Some things change, some things stay the same

    Afaf Girgis, Sylvie Lambert, Patrick McElduff, Billie Bonevski, Christophe Lecathelinais, Allison Boyes, Fiona Stacey

    This publication provides longitudinal insight into the needs of cancer carergivers, finding that although many carers needs decreased over time, up to a third of carers surveyed still had unmet needs after 24 months.

    Carer wellbeing Cancer Carer needs Peer-reviewed journal article Longitudinal Survey
    View
  • Specific groups of carers, Young carers

    1.1.2016

    The Longitudinal Study of Australian Children (LSAC) annual statistical report 2016

    Diana Warren, Ben Edwards

    This chapter aims to shed light on how many children provide care, how much time they spend caring, the type of care they provide, the impact of a household’s socio-economic circumstances on caring, and the impact of caring on a young person’s academic achievement.

    Young carers Children and young people Quantitative data Report Longitudinal
    View
  • Carer health and wellbeing, Physical health

    30.10.2017

    Recovery for carers of people with psychosis

    Abner Weng Cheong Poon, Lynette Joubert, Andrew Mackinnon, Carol Harvey

    This study explores the health and wellbeing of caregivers of people with psychosis.

    Psychosis Physical health Social work Peer-reviewed journal article Longitudinal
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    2.4.2015

    A longitudinal study of the health and wellbeing of culturally and linguistically diverse caregivers of people with psychosis in Australia

    Abner Weng Cheong Poon, Carol Harvey, Lynette Joubert

    This article examines the experiences of CALD carers of people living with psychosis and the impact that role has on their life.

    CALD Psychosis Carer wellbeing Mental health Peer-reviewed journal article Longitudinal
    View
  • Carer health and wellbeing, Mental health

    5.2.2016

    A longitudinal population-based study of carers of people with psychosis

    Abner Weng Cheong Poon, Carol Harvey, Andrew Mackinnon, Lynette Joubert

    This study aimed to investigate the health and wellbeing of carers of people with psychosis.

    Psychosis Mental health carers Longitudinal Peer-reviewed journal article
    View
  • Specific groups of carers, Young carers

    20.8.2021

    Associations between young informal caring and mental health

    Tania King, Ankur Singh, George Disney

    This article investigates the impact of caring in adolescence on the mental health young carers in proceeding years.

    Young carers Mental health Children and young people Peer-reviewed journal article Open access Longitudinal Quantitative data
    View
  • Specific groups of carers, Young carers

    1.8.2017

    Young carers

    Diana Warren, Ben Edwards

    This report provides valuable details about the lived experiences of young carers in Australia.

    Young carers Children and young people Carer recognition Open access Report Longitudinal
    View
  • Carer health and wellbeing, Mental health

    21.12.2017

    Predictors of long‐term distress in female partners of men diagnosed with prostate cancer

    Melissa K. Hyde, Melissa Legg, Stefano Occhipinti, Stephen J. Lepore, Anna Ugalde, Leah Zajdlewicz, Kirstyn Laurie, Jeff Dunn, Suzanne K. Chambers

    This study investigated the long term stress experienced by female carers of a partner with prostate cancer.

    Longitudinal Mental illness Peer-reviewed journal article Cancer Carer burden Quantitative data
    View
  • Caring and society, Economic value of caring

    20.6.2023

    Informal caregiving provision for disabled or elderly in the families and work productivity

    Syed Afroz Keramat, Rubayyat Hashmi, Bolaji Samson Aregbeshola, Tracy Comans

    This article looks at the relationship between informal caregiving and productivity loss in Australia, and how informal caregivers' productivity at work is affected by their caregiving responsibilities.

    Informal carers Socioeconomic factors Longitudinal Quantitative data
    View
  • Specific groups of carers, Young carers

    4.1.2024

    The effect of informal caring on mental health among adolescents and young adults in Australia

    Ludmila Fleitas Alfonzo, George Disney, Ankur Singh, Koen Simons, Tania King

    This study investigates how mental health changes over time among young people in different caregiving roles.

    Young carers Mental health Carer wellbeing Carer recognition Longitudinal
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.