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Perceived needs of carers of people with psychosis

An Australian longitudinal population-based study of caregivers of people with psychotic disorders

Published Date: 15.12.2017

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Theme: Specific groups of carers

Sub-theme: Caring for someone living with a mental illness

Psychosis Carer recognition Policy Carer needs Peer-reviewed journal article

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Specific groups of carers

Sub-theme: Caring for someone living with a mental illness

View Publication Psychosis Carer recognition Policy Carer needs Peer-reviewed journal article

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Perceived needs of carers of people with psychosis

An Australian longitudinal population-based study of caregivers of people with psychotic disorders

Published Date: 15.12.2017

  • Author/ Authors

    Abner Weng Cheong Poon, Lynette Joubert, Carol Harvey

  • Suggested citation (APA 7th edition)

    Poon, A., Joubert, L., & Harvey, C. (2018). Perceived needs of carers of people with psychosis: An Australian longitudinal population‐based study of caregivers of people with psychotic disorders. Health & Social Care in the Community, 26(3), 412–422. https://doi.org/10.1111/hsc.12530

Long Summary

This article takes a deeper look at the needs of carers for people with psychosis based on a series of semi-structured interviews with 98 carers recruited in the Australian prevalence study of psychosis. Results indicate that there was little improvement in carers’ perceived needs overtime and these needs were generally related to their perception of their own health, wellbeing and social connectedness. Findings revealed that services need to take a more holistic approach in order to address carer needs. Key findings indicate that carers want more involvement in treatment plans, greater access to information, additional wellbeing interventions for the person they care for, more biopsychosocial interventions for carers and a choice in whether or not they provide care.

    Key Messages for Carers


  • It is widely felt that current policy does not adequately support carer needs
  • Example of carer participation in research and the insights that this can provide to policy makers

  • Key Messages for Policy Makers


  • Currently carer needs are not improving in the long term
  • Existing policy is not providing holistic support to carers
  • Carers want more information and greater involvement in treatment plans

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.