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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Qualitative descriptive study
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Your search has returned 14 results

  • Specific groups of carers, Young carers

    13.10.2021

    Young carers in Australia

    Lukas Hofstaetter, Isaac Yeboah Addo, Sienna Aguilar, Abner Weng Cheong Poon

    This qualitative study presents insights into the effects of providing informal care on the lives of young carers and their support-seeking behaviour.

    Young carers Carer support Children and young people Peer-reviewed journal article Qualitative descriptive study
    View
  • Specific groups of carers, Caring for someone who is older

    1.7.2019

    Carers of older Australians

    Royal Commission into Aged Care Quality and Safety

    This brief paper provides a high-level overview of the role of family and friends in caring for older Australians and is based on findings from the Royal Commission into Aged Care Quality and Safety.

    Aged care Older adults Carer support Qualitative descriptive study
    View
  • Carer health and wellbeing, Mental health

    26.10.2018

    Carers’ concerns about their older persons (Carees) at risk of falling

    Seng Giap Marcus Ang, Anthony Paul O’Brien, Amanda Wilson

    This study explored the experience of carers of people who are at risk of falling and how these carers can best be supported.

    Carer burden Older people Fall concern Open access Peer-reviewed journal article Qualitative descriptive study Quantitative data
    View
  • Specific groups of carers, Caring for someone at the end of life

    28.10.2020

    Caring precariously

    Kristin Bindley, Joanne M. Lewis, Joanne Travaglia, Michelle DiGiacomo

    This article explores the experiences of carers who are navigating end-of-life care.

    Palliative care Social welfare Socioeconomic factors Qualitative data Family caregivers Open access Peer-reviewed journal article Qualitative descriptive study
    View
  • Service systems, Aged care services

    9.9.2021

    Choosing and managing aged care services from afar

    Kate M. Gunn, Julie Luker, Rama Ramanathan, Xiomara Skrabal Ross, Amanda Hutchinson, Elisabeth Huynh, Ian Olver

    This research aims to identify the factors that influence caregivers' decisions about the aged care providers they select for their elder relatives when caring from a distance and what they value once they have engaged a service.

    Ageing Aged care Qualitative descriptive study
    View
  • Service systems, Health care services

    18.12.2023

    Stakeholder perspectives on short-stay joint replacement programs

    Ilana Ackerman, Danielle Berkovic, Sze-Ee Soh, Justine Naylor, Peter Lewis, Richard de Steiger, Rachelle Buchbinder, Zanfina Ademi, Patrick Vallance, Ian Harris

    This study aimed to investigate the perspectives of stakeholder groups, including carers of people who had had a recent hip or knee replacement, on short-stay joint replacement programs.

    Health care services Disability Carer support Information Qualitative descriptive study Quantitative data
    View
  • Service systems, Health care services

    7.11.2023

    ‘Everything would have gone a lot better if someone had listened to me’

    Laura Hayes, Heather McIntyre, Mark Loughhead, Caroline Allen, Dean Barton-Smith, Brooke Bickley, Louis Vega, Jewels Smith, Ursula Wharton, Nicholas Procter

    This study looks at Australians with a psychosocial disability (PSD) and a National Disability Insurance Scheme (NDIS), and their carers, and their access to emergency care due to their fluctuating conditions or when support has become insufficient.

    NDIS Disability Support services Qualitative descriptive study
    View
  • Recognition and inclusion, Carer recognition

    8.11.2023

    A mixed method study exploring gender differences in dementia caregiving

    Vincent Poisson, Roslyn Poulos, Adrienne Withall, Ann Reilly, Leanne Emerson, Claire O'Connor

    This study investigated the gendered differences in dementia caregiving.

    Gender Dementia Support services Quantitative data Qualitative descriptive study
    View
  • Service systems, Health care services

    14.9.2023

    Characteristics and Health Service Use of a Longitudinal Cohort of Carers Aged over 45 in Central and Eastern Sydney, Australia

    Ben Harris-Roxas, Alamgir Kabir, Rachael Kearns, Gurdive Webster, Lisa Woodland, Margo Barr

    Health Longitudinal Physical health Carer identity Qualitative descriptive study
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    1.9.2024

    Integrating community and family aged care

    Shuang Liu, Nancy A. Pachana, Kumchong Lee, Mary Ann Geronimo, Sunil Bhar

    Based on the findings from 100 interviews with carer, we make six recommendations for service providers and policymakers in the aged care sector to consider implementing in practice and policymaking to support family carers of older CALD people and older CALD community in Australia.

    CALD Aged care Qualitative data Qualitative descriptive study
    View
  • Service systems, Disability services

    3.12.2024

    Facilitators, barriers, and strategies for supporting shared decision-making with people with intellectual disability:

    Kathryn Teale, Abigail Lewis, Rachel Skoss

    The study explores how primary healthcare professionals in Western Australia support shared decision-making with adults who have intellectual disabilities.

    Disability services Decision-making Support services Qualitative descriptive study
    View
  • Carer health and wellbeing, Carer wellbeing measures

    26.10.2025

    Behavioural changes and perceived criminal offending:

    Nola Ries , Fiona Kumfor

    The study explores how behavioural and personality changes in people living with dementia may lead to situations perceived as criminal offending, as reported by carers.

    Dementia Carer wellbeing Qualitative descriptive study
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.