Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 35 results
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24.1.2018
Carers' preferences for the delivery of therapy services for people with disability in rural Australia
Gisselle Gallego, Angela Dew, Anita Bundy, Kim Bulkeley, Jennie Brentnall, Craig Veitch
This study used a survey to better understand the needs and preferences of carers and care recipients regarding the delivery of therapy services.
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1.12.2021
‘Sometimes they’re gammin, playing tricks, but sometimes it’s ears.’
Samantha F Harkus, Kylie AJ Caso, Sharron T Hall, Carmen Kung, Toni N Manton, Sarah J Murthy, Giselle AL Olive, Trumaine M Rankmore, Nikkita L Roberts, Meagan L Ward, Kelvin M Kong
This paper uses data from the Urban Hearing Pathways study to investigate avoidable hearing loss in young, urban Aboriginal and Torres Strait Islander children and their families.
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4.8.2017
Implementing a multi-modal support service model for the family caregivers of persons with age-related macular degeneration
Bamini Gopinath, Ashley Craig, Annette Kifley, Gerald Liew, Jaye Bloffwitch, Kim Van Vu, Nichole Joachim, Robert Cummins, Julie Heraghty, Timothy Broady, Alison Hayes, Paul Mitchell
This study investigated the experiences of individuals who care for persons with age-related macular degeneration and the need to provide tailored support to these carers.
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29.11.2017
Experiences and needs of carers of Aboriginal children with a disability
Michelle DiGiacomo, Anna Green, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Penelope Abbott, Patricia M. Davidson
This article examines the double disadvantage that Aboriginal and Torres Strait Islander people with a disability experience, as well as the needs of their family members and carers.
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1.12.2016
Navigating the journey of Aboriginal childhood disability
Anna Green, Penelope Abbott, Patricia Delaney, Patrick Patradoon-Ho, John Delaney, Michelle DiGiacomo, Patricia M. Davidson
This study investigated the journey that carers of Aboriginal children with a disability go through when accessing services and support.
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17.4.2020
‘It’s quite a complex trail for families now’
Anna Green, Penelope Abbott, Tim Luckett, John Delaney, Patricia Delaney, Hasantha Gunasekera, Michelle DiGiacomo, Patricia M. Davidson
This article explores the many barriers to accessing services that families of Aboriginal and Torres Strait Islander children with a disability experience.
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10.12.2019
Collaborating across sectors to provide early intervention for Aboriginal and Torres Strait Islander children with disability and their families
Anna Green, Penelope Abbott, Tim Luckett, John Delaney, Patricia Delaney, Hasantha Gunasekera, Michelle DiGiacomo, Patricia M. Davidson
This study explores service providers perception of some of the factors that cause lack of coordination across services for families of Aboriginal children with disability.