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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 70 results

  • Service systems, Carer support services

    4.8.2017

    Implementing a multi-modal support service model for the family caregivers of persons with age-related macular degeneration

    Bamini Gopinath, Ashley Craig, Annette Kifley, Gerald Liew, Jaye Bloffwitch, Kim Van Vu, Nichole Joachim, Robert Cummins, Julie Heraghty, Timothy Broady, Alison Hayes, Paul Mitchell

    This study investigated the experiences of individuals who care for persons with age-related macular degeneration and the need to provide tailored support to these carers.

    Age-related macular degeneration Family caregivers Support services Peer-reviewed journal article Open access Quantitative data
    View
  • Carer health and wellbeing, Mental health

    26.10.2018

    Carers’ concerns about their older persons (Carees) at risk of falling

    Seng Giap Marcus Ang, Anthony Paul O’Brien, Amanda Wilson

    This study explored the experience of carers of people who are at risk of falling and how these carers can best be supported.

    Carer burden Older people Fall concern Open access Peer-reviewed journal article Qualitative descriptive study Quantitative data
    View
  • Specific groups of carers, Young carers

    24.5.2019

    Are young carers less engaged in school than non-carers?

    Myra Hamilton, Gerry Redmond

    This study explores the impact of caring on education engagement in secondary school.

    Young carers Carer education Higher education Stigma Carer support Open access Peer-reviewed journal article Survey
    View
  • Income and paid work, Retirement and superannuation

    30.8.2016

    Recognising unpaid care in private pension schemes

    Myra Hamilton, Cathy Thomson

    This article explores the inequality that many carers face regarding their retirement income due to an often interrupted workforce history.

    Retirement Private pension schemes Financial literacy Financial wellbeing Open access Peer-reviewed journal article Literature review
    View
  • Recognition and inclusion, Carer recognition

    8.1.2020

    Gendered moral rationalities in later life

    Myra Hamilton, Bridget Suthersan

    This article explores the experiences of grandparents who often play an important role in child-care for families whilst simultaneously engaging in paid employment.

    Grandparents Employment Gender Open access Peer-reviewed journal article Survey Focus group
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    1.8.2018

    Focus groups with culturally and linguistically diverse carers in NSW

    Carers NSW

    This report reveals the findings of six focus groups which explored the experiences and needs of carers from CALD communities.

    CALD Focus group Participatory research Open access
    View
  • Planning and transitions, Changes in the caring role

    1.8.2020

    Care goes viral

    Michael Fine, Joan Tronto

    This editorial contributes towards a greater discussion of the impact of COVID-19 on all aspects of caregiving.

    COVID-19 Pandemic Care theory Peer-reviewed journal article Open access Report
    View
  • Recognition and inclusion, Carer recognition

    1.3.2017

    Care and caring

    Sue Yeandle, Yueh-Ching Chou, Michael Fine, Mary Larkin, Alisoun Milne

    This editorial introduces the first edition of the International Journal of Care and Caring (IJCC).

    Research Interdisciplinary Peer-reviewed journal article Open access
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    29.11.2017

    Experiences and needs of carers of Aboriginal children with a disability

    Michelle DiGiacomo, Anna Green, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Penelope Abbott, Patricia M. Davidson

    This article examines the double disadvantage that Aboriginal and Torres Strait Islander people with a disability experience, as well as the needs of their family members and carers.

    Aboriginal and Torres Strait Islander Support services Children with disabilities Open access Peer-reviewed journal article Thematic analysis Qualitative study
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    19.8.2013

    ‘Doing the hard yards’

    Michelle DiGiacomo, Patricia Delaney, Penelope Abbott, Patricia M. Davidson, Joanne Delaney, Frank Vincent

    This article analyses the experiences of carers of Aboriginal children accessing disability services.

    Disability services Aboriginal and Torres Strait Islander Children with disabilities Peer-reviewed journal article Open access Focus group
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    1.12.2016

    Navigating the journey of Aboriginal childhood disability

    Anna Green, Penelope Abbott, Patricia Delaney, Patrick Patradoon-Ho, John Delaney, Michelle DiGiacomo, Patricia M. Davidson

    This study investigated the journey that carers of Aboriginal children with a disability go through when accessing services and support.

    Aboriginal and Torres Strait Islander Children with disabilities Support services Peer-reviewed journal article Open access Qualitative data
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    17.4.2020

    ‘It’s quite a complex trail for families now’

    Anna Green, Penelope Abbott, Tim Luckett, John Delaney, Patricia Delaney, Hasantha Gunasekera, Michelle DiGiacomo, Patricia M. Davidson

    This article explores the many barriers to accessing services that families of Aboriginal and Torres Strait Islander children with a disability experience.

    Aboriginal and Torres Strait Islander Children with disabilities Support services Peer-reviewed journal article Open access Qualitative study
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.