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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 95 results

  • Caring and society, Carer statistics

    1.10.2016

    Carers NSW 2016 carer survey

    Carers NSW

    The Carers NSW Carer Survey collects information about carers which is then used to guide the direction of the organisation and to facilitate systemic advocacy for carers.

    Survey Lived experience Work and care Carer wellbeing Report
    View
  • Service systems, Respite services

    1.10.2016

    National survey of carers respite needs

    Carers NSW

    This report reveals the findings of a survey conducted by Carers NSW to gain a greater understanding of carers' respite needs and experiences of using respite.

    Respite Carer wellbeing Survey Report
    View
  • Service systems, Respite services

    1.4.2021

    Repositioning respite within consumer directed service systems

    Carers NSW

    An evidence-based report demonstrating the ways respite is an unmet carer need, and detailing opportunities for respite to be sustainably resourced.

    Wellbeing Respite Carer support Report
    View
  • Specific groups of carers, Young carers

    1.6.2020

    Young carers research project

    Carers NSW

    This research project aimed to establish evidence regarding how to better support the needs and experiences of young carers.

    Young carers Research Hidden carers Summary report Focus group Qualitative data
    View
  • Planning and transitions, Changes in the caring role

    1.8.2020

    Care goes viral

    Michael Fine, Joan Tronto

    This editorial contributes towards a greater discussion of the impact of COVID-19 on all aspects of caregiving.

    COVID-19 Pandemic Care theory Peer-reviewed journal article Open access Report
    View
  • Caring and society, Carer statistics

    1.11.2012

    Carers NSW 2012 carer survey

    Carers NSW

    This report provides an overview of the 2012 Carer Survey conducted by Carers NSW.

    Carer wellbeing Respite Mental health services Survey Report
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.5.2020

    The COVID-19 pandemic

    Carers NSW

    This consultation report explores the impact of the COVID-19 pandemic on carers.

    COVID-19 Support services Lived experience Consultation Report
    View
  • Income and paid work, Financial hardship

    1.1.2009

    The costs of caring and the living standards of carers

    Trish Hill, Cathy Thomson, Bettina Cass

    In conjunction with the Australian Government Department of Families, Housing, Community Services and Indigenous Affairs the study looks at the economic patterns prevalent among carers.

    Carer recognition Carer support Financial wellbeing Open access Report
    View
  • Caring and society, Caring during the COVID-19 pandemic

    2.6.2020

    Caring during COVID-19

    Meredith Nash, Brendan Churchill

    This article analyses how university institutions have been managing employees with carer responsibilities during the COVID-19 pandemic.

    COVID-19 Carer-inclusive workplaces Gender inequality Financial wellbeing Peer-reviewed journal article Report
    View
  • Recognition and inclusion, Carer recognition

    1.7.2019

    Carers, we see you – UTS student consultation report

    Domenic Svejkar, Paula Gleeson, Priya Visvanathan

    This report discusses the positive and negative experiences of carers within the UTS student body along with a range of strategies to accommodate them.

    Student carers Carer support Higher education Consultation Report
    View
  • Specific groups of carers, Young carers

    1.1.2021

    Young carer advocacy project

    Little Dreamers

    This advocacy report by Little Dreamers Australia, comprehensively explores the experiences of young carers around Australia and provides four key recommendations to improve the quality of life of young carers.

    Young carers Advocacy Lived experience Quantitative data Report
    View
  • Service systems, Disability services

    1.9.2021

    Carers missing out

    Timothy Broady, Nicole Webber

    This report examines claims that carers are missing out on essential services following the introduction of the National Disability Insurance Scheme (NDIS).

    NDIS Disability Disability services Carer support Report
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.