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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 486 results

  • Specific groups of carers,

    24.9.2024

    ‘Who looks after me?’

    Disability Policy Qualitative data
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    2.10.2024

    A scoping review of barriers to accessing aged care services for older adults from culturally and linguistically diverse communities in Australia

    Anthony Obinna Iwuagwu, Abner Weng Cheong Poon, Elizabeth Fernandez

    The ageing population of culturally and linguistically diverse (CALD) individuals in Australia is growing due to the ageing of early migrants and increased family reunification. This scoping review examined research on barriers to aged care services for CALD older adults using the Access to Care Framework’s five dimensions: availability, accessibility, accommodation, affordability, and acceptability.

    CALD Carer inclusion Research Aged care
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    28.5.2024

    Patient Caregiver Perspectives on Accessing Language Interpretation in a Pediatric Emergency Department

    Emily A. Hartford, Nicholas Dimenstein, Barry Dwight , K. Casey Lion

    This article highlights the challenges faced by patients and caregivers who speak a language other than English (LOE) in pediatric emergency departments (ED).

    Carer rights Decision-making Health care CALD
    View
  • Carer health and wellbeing, Prevention and early intervention

    11.6.2024

    How to support caregivers in general practice: development of the Caregiver Care Model

    Anna Mygind, Sara Marie Hebsgaard Offersen, Mai-Britt Guldin, Kaj S. Christensen, Mette Kjærgaard Nielsen

    The article discusses the development and pilot testing of the 'Caregiver Care Model', which aims to support caregivers in general practice by addressing emotional distress and grief.

    Mental health Palliative care Carer wellbeing
    View
  • Carer health and wellbeing, Mental health

    22.5.2024

    Can cessation of caregiving for parents relieve family caregivers’ psychological distress?

    Takashi Oshio, Ruru Ping

    This article examines the mental health effects of caregiving cessation among family caregivers in Japan, using data from a 17-wave national survey of 8,280 individuals aged 50–59.

    Carer support Carer needs Mental health Carer wellbeing Japan
    View
  • Developing skills and knowledge, Caring skills

    17.10.2024

    Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project

    Lukas Hofstätter ,

    Existing programs often focus on mental health but overlook practical support for cancer carers. The iCanSupport project adapted existing programs using feedback from carers and healthcare professionals, making them more relevant to carers’ specific needs.

    Information Diversity Carer education Carer needs Lived experience Cancer
    View
  • Service systems, Carer support services

    16.9.2024

    Becoming an inadvertent home care user: The transition for cohabitating partners

    Håkan Jönson, Tove Harnett

    This study explores how the lives of cohabiting partners are affected by home care services and the strategies they use to cope with the presence of care workers in their homes.

    Carer burden Carer support caregiver adaptation International publication
    View
  • Recognition and inclusion, Carer recognition

    29.9.2024

    Co-Designing Caregiver Support Groups: Rapid Review with a Non-Profit Organization

    Steven Hall, Erin Leeder, Leslie Macala, Jennifer White, Mikayla Hazel

    This review aims to enhance evidence base on co-designing support groups for caregivers of older adults, focusing on their involvement in the co-design process.

    Carer inclusion Diversity Carer support sector International publication
    View
  • Developing skills and knowledge, Group learning

    29.9.2024

    A Whole Child Approach

    Elizabeth A. Klinepeter, Jaime D. Choate, Tanya Nelson Hall, Karen DiValerio Gibbs

    This qualitative study investigates caregiver experiences with inpatient care for children with Autism Spectrum Disorder (ASD) who have behavioural health needs.

    Capacity building Health care services International publication
    View
  • Specific groups of carers, Young carers

    28.10.2024

    Generation Survey - What Young Australia Thinks

    Ben Edwards, Kate Doery, Jessica Arnup, Intifar Chowdhury, Daniel Edwards, Kylie Hillman

    The Generation Study is national study led by the Australian National University (ANU) where students are surveyed about to better understand contemporary experiences of young Australians both within the school environment and outside education. The ten-year study aims to capture trends about career interests and post-school plans.

    Young carers Survey Carer wellbeing
    View
  • Specific groups of carers, Caring for someone with a chronic health condition

    1.1.2023

    Look after your eyes:

    World Health Organisation, Dementia Australia

    This resource provides information about eyecare for people living with dementia, including a pocket card to support communication with eyecare professionals. It was co-designed with people living with dementia and carers.

    View
  • Carer health and wellbeing, Wellbeing programs

    1.7.2023

    Measuring What Matters:

    Australian Government - The Treasury

    This framework outlines Australia's approach to assessing wellbeing beyond GDP. It emphasises a holistic framework that incorporates non-economic indicators, such as social, environmental and accessibility opportunities.

    Capacity building Evaluation Carer wellbeing
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.