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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 5 results

  • Planning and transitions, Changes in the caring role

    3.12.2021

    (How) Will it end?

    Lukas Hofstaetter, Emma Kirby, Giselle Newton, Iva Strnadova, Christy E. Newman

    Using a qualitative approach, this article explores the lived experiences of current and former carers, including carers’ concerns, opportunities and preferences for care endings, in order to gain insights that can be used to develop more effective pathways out of caring.

    Former carers Qualitative data Informal carers Peer-reviewed journal article Open access
    View
  • Service systems, Carer support services

    1.11.2018

    Hidden carers?

    Myra Hamilton, Jessica Botfield, Asha Persson, Christy E. Newman, Joanne Bryant, Kylie Valentine, Jack Wallace

    This article explores the experiences of those caring for people with HIV, recognising that there is a gap in carer research regarding the needs of this group of carers.

    Carer recognition Carer support Stigma Hidden carers HIV Peer-reviewed journal article
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  • Caring and society, Caring during the COVID-19 pandemic

    2.6.2020

    Caring during COVID-19

    Meredith Nash, Brendan Churchill

    This article analyses how university institutions have been managing employees with carer responsibilities during the COVID-19 pandemic.

    COVID-19 Carer-inclusive workplaces Gender inequality Financial wellbeing Peer-reviewed journal article
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  • Planning and transitions, Transitions in care arrangements

    1.1.2023

    When caring ends: understanding and supporting informal care trajectories

    Emma Kirby, Christy E. Newman, Brendan Churchill, Louisa Smith, Iva Strnadova

    This report, part of a broader research program by the UNSW Centre for Social Research in Health aims to look at how, why, when, and for whom caring ends.

    Caring Carer identity Workforce participation
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  • Developing skills and knowledge, Self-advocacy

    6.12.2024

    ‘Is There Anything Else You’d Like to Tell Us About Your Experience?’

    Giselle Newton, Emma Kirby, Lukas Hofstätter , Sarah Judd-Lam, Louisa Smith, Brendan Churchill, Iva Strnadova, Christy E. Newman

    Open survey responses are a suitable tool for "sociological listening".

    Survey Methodology Carer inclusion Research
    View

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.