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Hidden carers?

A scoping review of the needs of carers of people with HIV in the contemporary treatment era

Published Date: 1.11.2018

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Theme: Service systems

Sub-theme: Carer support services

Carer recognition Carer support Stigma Hidden carers HIV Peer-reviewed journal article Scoping review

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Service systems

Sub-theme: Carer support services

View Publication Carer recognition Carer support Stigma Hidden carers HIV Peer-reviewed journal article Scoping review

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Hidden carers?

A scoping review of the needs of carers of people with HIV in the contemporary treatment era

Published Date: 1.11.2018

  • Author/ Authors

    Myra Hamilton, Jessica Botfield, Asha Persson, Christy E. Newman, Joanne Bryant, Kylie Valentine, Jack Wallace

  • Suggested citation (APA 7th edition)

    Hamilton, M., Botfield, J., Persson, A., Newman, C., Bryant, J., Valentine, K., & Wallace, J. (2018). Hidden carers? A scoping review of the needs of carers of people with HIV in the contemporary treatment era. International Journal of Care and Caring, 2(4), 529–549. https://doi.org/10.1332/239788218X15411705099442

Long Summary

This article explores the experiences of those caring for people with HIV, recognising that there is a gap in carer research regarding the needs of this group of carers. The study found that carers of people with HIV feel invisible to support services despite their needs being very similar to that of other carers.

    Key Messages for Carers


  • The support needs of carers of people with HIV need greater recognition
  • The broader social understanding of HIV can greatly impact access to support services for carers of people with HIV

  • Key Messages for Policy Makers


  • Suggests that many of the needs of carers of people with HIV are currently unmet
  • Suggests that the care needs of those who have HIV are unrecognised
  • Discuss the stigma and discrimination that may hinder access to support services for carers

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.