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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 19 results

  • Recognition and inclusion,

    1.3.2017

    Carer legislation, policy support initiatives and future implications

    Christina Aggar, Timothy Broady

    This report provides an overview of Australian carer legislation and policy initiatives to support carers.

    Policy Social policy Carer support Peer-reviewed journal article
    View
  • Carer health and wellbeing, Physical health

    8.7.2016

    Exploring manual handling practices by informal carers

    Kate Thomas, Carole James, Timothy Broady

    This research explores the manual handling needs and practices of primary carers and makes recommendations regarding education and support with equipment purchasing and use.

    Chronic illness Education Health Caregivers Peer-reviewed journal article
    View
  • Service systems, Disability services

    1.1.2016

    Individualized funding

    Hugh Bainbridge, Mandy Fong, Timothy Broady

    This article examines the relationship between individualised funding for people with disabilities and their caregiver’s experience in paid employment.

    Autism Employment Carer support Peer-reviewed journal article
    View
  • Income and paid work, Support at work

    1.5.2019

    Book review: The sandwich generation

    Timothy Broady

    This resource provides an overview of the book ‘The sandwich generation: Caring for oneself and others at home and at work’ by Ronald J. Burke and Lisa M. Calvino.

    Employment Policy Carer wellbeing Informal carers Book review
    View
  • Relationships and community, Social connection

    1.1.2019

    Understanding the social and emotional needs of carers

    Trish Hill, Timothy Broady

    This review provides an overview of key findings in the literature about ‘what works’ or effective programs to improve the social and emotional wellbeing of carers.

    Social connectedness Social networks
    View
  • Service systems, Disability services

    22.12.2016

    What is a person-centred approach?

    Timothy Broady

    This article reviews the person-centred approach to care within the disability sector in NSW.

    Disability services Carer recognition Carer education Person-centred Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone with autism

    1.1.2017

    Understanding carers' lived experience of stigma

    Timothy Broady, Gerard J. Stoyles, Corinne Morse

    This article investigates carers’ perceptions of stigmatisation when caring for a child with autism.

    Stigma Lived experience Discrimination Autism Open access Peer-reviewed journal article
    View
  • Recognition and inclusion, Carer recognition

    4.8.2015

    The carer persona

    Timothy Broady

    This article discusses the difficulties that arise surrounding the 'carer persona' identity which focuses primarily on the needs of their care recipients and often neglects the carers own needs.

    Carer identity Carer needs Carer intervention Carer rights
    View
  • Income and paid work, Support at work

    1.1.2017

    Caregiving responsibilities for a child, spouse or parent

    Hugh Bainbridge, Timothy Broady

    This study investigated how a care recipient's level of independence impacts a carer's wellbeing and career development.

    Carer-inclusive workplaces Carer wellbeing Financial wellbeing Flexible work Open access Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone with dementia

    18.1.2018

    Caring for a family member or friend with dementia at the end of life

    Timothy Broady, Freya Saich, Tom Hinton

    This article explores the experiences of carers who are providing end-of-life care to a family member or friend with dementia.

    End of life care Dementia Peer-reviewed journal article Palliative care
    View
  • Carer health and wellbeing, Mental health

    30.6.2015

    “How can I take a break?”

    Timothy Broady, Katherine Stone

    This article focuses on the experiences of carers who care for care recipients with mental health issues. The study found that carers of people with mental health suffered poor mental health themselves.

    Mental health carers Mental health Wellbeing Support services
    View
  • Specific groups of carers, Caring for someone at the end of life

    12.11.2020

    Carers’ experiences of end-of-life care

    Timothy Broady

    This article explores various practical and emotional challenges that family and friend carers may face when the person that they care for is receiving end-of-life care.

    End of life care Carer identity Bereavement Family caregivers Open access Peer-reviewed journal article
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.