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Ageing together and the paradox of negotiating care transitions for informal disability carers in migrant multicultural communities

Published Date: 9.4.2025

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Theme: Specific groups of carers

Sub-theme: Culturally and linguistically diverse carers

Ageing CALD Disability Qualitative study

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Specific groups of carers

Sub-theme: Culturally and linguistically diverse carers

View Publication Ageing CALD Disability Qualitative study

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Ageing together and the paradox of negotiating care transitions for informal disability carers in migrant multicultural communities

Published Date: 9.4.2025

  • Author/ Authors

    Nichole Georgeou,

  • Suggested citation (APA 7th edition)

    Doh, D., Mogensen, L., Georgeou, N., Balram, R., & Soldatic, K. (2025). Ageing together and the paradox of negotiating care transitions for informal disability carers in migrant multicultural communities. Community, Work & Family, 1–19. https://doi.org/10.1080/13668803.2025.2486125

Long Summary

This paper examines care transition planning and the experiences of ageing carers who provide care for family members with disability from culturally and racially marginalised migrant (CaRM) backgrounds in Western Sydney. The findings in this paper show that ageing carers are anxious about the future, stemming from their self-awareness of ageing, ongoing health concerns, and frustration with service systems. Long-term care transition plans include seeking independence for the family member with a disability, continuing living together until the end of life, and relying on normative disability services. The paper argues that ageing informal carers from CaRM backgrounds providing disability care face a growing challenge in negotiating social and healthcare service barriers affecting how they plan for future care. Ongoing advocacy and awareness of disability issues in CaRM communities are essential for prioritising care transition planning, disability rights, and service navigation. Carer support organisations should empower aging carers to address inconsistencies in aged and disability care, considering cultural norms.

    Key Messages for Carers


  • Caring can result in anxiety about the future because of ongoing health concerns and frustration with service systems.
  • Ageing carers from culturally and racially marginalised migrant (CaRM) backgrounds providing disability care can experience particular challenges negotiating social and healthcare services.
  • Ongoing advocacy and awareness of disability issues in CaRM communities is important.

  • Key Messages for Policy Makers


  • Ageing carers are often anxious about the future, stemming from their self-awareness of ageing, ongoing health concerns, and frustration with service systems.
  • Ageing carers from culturally and racially marginalised migrant (CaRM) backgrounds providing disability care face a growing challenge in negotiating social and healthcare service barriers affecting how they plan for future care.
  • Ongoing advocacy and awareness of disability issues in CaRM communities are essential for prioritising care transition planning, disability rights, and service navigation.

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.