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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 45 results

  • Caring and society, Caring during the COVID-19 pandemic

    1.2.2022

    Informal care in Australia during the COVID-19 pandemic

    Lukas Hofstaetter, Grace Cherrington

    While strong preventative measures helped Australia manage the COVID-19 pandemic better than most countries, many carers have been left more stressed, isolated and worse off financially.

    Informal carers COVID-19 Open access Case study Survey Consultation Report
    View
  • Caring and society, Caring during the COVID-19 pandemic

    13.1.2022

    Coronavirus (COVID-19) and carers

    Carers NSW

    This position statement outlines some of the difficulties carers have faced throughout the COVID-19 pandemic, drawing on policy and media analysis, carer case studies, and ongoing consultation with carers and other stakeholders.

    COVID-19 Carer wellbeing Support services Financial wellbeing 5 minute read Position paper
    View
  • Caring and society, Carer statistics

    1.1.2022

    2022 National Carer Survey Factsheets

    Carers NSW

    This resource provides access to a series of fact sheets and briefings outlining the preliminary results from the 2022 Carer Survey.

    Survey Carer wellbeing Carer identity
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.6.2021

    NSW carer support needs

    The University of Sydney Research Centre for Children & Families

    This report reviews the support needs of carers, including Aboriginal Kinship carers in the context of the COVID-19 pandemic.

    COVID-19 Aboriginal and Torres Strait Islander Carer support Report
    View
  • Caring and society, Carer statistics

    11.10.2020

    2020 National Carer Survey

    Carers NSW

    This summary report outlines key findings from the 2020 National Carer Survey, conducted by Carers NSW with the support of the State and Territory Carer Organisations.

    Carer support Financial stress Employment Wellbeing Health Health care services Disability services Mental health services Aged care Carer recognition Survey Summary report
    View
  • Caring and society, Economic value of caring

    1.8.2020

    The value of informal care in 2020

    Deloitte Access Economics

    This report estimates the total value of informal care provided in Australia today and examines the implications of demographic trends and projections for informal care in the future.

    Informal carers Economic modelling Social policy Quantitative data 2 minute read Finances
    View
  • Caring and society, Care costs

    25.7.2020

    Measuring carer outcomes in an economic evaluation

    Lidia Engel, Stacey Rand, Renske Hoefman, Jessica Bucholc, Cathrine Mihalopoulos, Anne Muldowney, Nikki McCaffrey, Anna Ugalde

    This study investigated the overlapping or complementary aspects of carer-related economic evaluation measures including the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer), Carer Experience Scale (CES), and Care-Related Quality of Life (CarerQoL).

    Carer support Peer-reviewed journal article Economic modelling Survey
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.7.2020

    COVID-19 and carers

    Carers NSW

    The COVID-19 pandemic has resulted in social and economic challenges for carers including increased caring responsibilities and mental health stressors as well as reduced access to services and ability to partake in employment and education.

    COVID-19 Pandemic Carer wellbeing Literature review 10 minute read
    View
  • Caring and society, Caring during the COVID-19 pandemic

    2.6.2020

    Caring during COVID-19

    Meredith Nash, Brendan Churchill

    This article analyses how university institutions have been managing employees with carer responsibilities during the COVID-19 pandemic.

    COVID-19 Carer-inclusive workplaces Gender inequality Financial wellbeing Peer-reviewed journal article Report
    View
  • Caring and society, Caring during the COVID-19 pandemic

    7.5.2020

    Coronavirus (COVID-19) and carers

    Carers NSW

    This position statement advocates for greater consideration and support for the health and wellbeing of carers during the COVID-19 crisis.

    COVID-19 Carer education Policy Flexible work 5 minute read Position paper
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.5.2020

    The COVID-19 pandemic

    Carers NSW

    This consultation report explores the impact of the COVID-19 pandemic on carers.

    COVID-19 Support services Lived experience Consultation Report
    View
  • Caring and society, Social value of caring

    21.4.2020

    Caregiving work

    Aspa Sarris, Martha Augoustinos, Nicole Williams, Brooke Ferguson

    This article explores some of the major themes and experiences associated with caregiving.

    Carer wellbeing Informal carers Qualitative data Family caregivers Peer-reviewed journal article Qualitative study
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.