Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 19 results
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1.2.2025
The Death Literacy Index:
Kristine Van Dinther , Kerrie Noonan, Rosemary Leonard , Sara Javanparast
This study emphasises the value of experiential knowledge among grieving carers, advocating for compassionate community networks where carers can share experiences and receive support, particularly after their loss.
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1.1.2023
When caring ends: understanding and supporting informal care trajectories
Emma Kirby, Christy E. Newman, Brendan Churchill, Louisa Smith, Iva Strnadova
This report, part of a broader research program by the UNSW Centre for Social Research in Health aims to look at how, why, when, and for whom caring ends.
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9.8.2022
People with disability and carers at more risk of homelessness, PTSD after floods
Ivy Shih
Inclusion of carers and people living with a disability in both flood preparedness and recovery efforts is urgently needed in Australia, with flood events compound existing physical and mental health issues.
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1.7.2022
Building a new life
Wendy Duggleby, Hannah M. O'Rourke, Pamela Baxter, Cheryl Nekolaichuk, Genevieve Thompson, Shelley Peacock, Sunita Ghosh, Jayna Holroyd-Leduc, Carrie McAiney, Véronique Dubé, Jennifer Swindle, Madeleine Pagnucco-Renaud, Samina Sana
This paper explored how family carers of people living with dementia that now reside in long term care deal with significant changes, and provides background on how to best support these carers
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1.5.2022
Factors contributing to the mental health outcomes of carers during the transition of their family member to residential aged care
Vera Camões-Costa , Jayasree Loganathan, Chris Barton, Alana Hewitt, Xiaoping Lin, Bianca Brijnath
This article sought to identify factors influencing adverse mental health outcomes among family carers following the transition of an older family member to a residential aged care facility (RACF).