Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 49 results
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22.1.2018
Australian family carer responses when a loved one receives a diagnosis of Motor Neurone Disease
Margaret O'Connor, Samar Aoun, Lauren Breen
This paper describes the qualitative data from a large Australian survey of family carers of people with MND, to ascertain their experiences of receiving the diagnosis.
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11.1.2018
I just can't please them all and stay sane
Gemma Tatangelo, Marita McCabe, Ashley Macleod, Anastasia Konis
Examining the relationship between family dynamics and adult child caregiver distress, this study seeks to better understand the experience of caring for an older relative with dementia and address problematic family dynamics in the caring context.
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3.9.2011
Primary caregivers’ satisfaction with clinicians’ response to them as informal carers of young people with first-episode psychosis
Terence V McCann, Dan I Lubman, Eileen Clark
This article aims to explore carers’ experiences of mental health nurses and other mental health clinicians in regard to how they respond to them as carers of young people with first-episode psychosis.
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4.12.2014
Social participation and family carers of people living with dementia in Australia
Rhonda Nay, Michael Bauer, Deirdre Fetherstonhaugh, Wendy Moyle, Laura Tarzia, Linda McAuliffe
This article explores how caring for a person living with dementia can affect the carers ability to participate in social engagement.
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10.4.2018
A person-centred approach to family carer needs assessment and support in dementia community care in Western Australia
Samar Aoun, Chris Toye, Susan Slatyer, Andrew Robinson, Elizabeth Beattie
This study identifies the support needs of informal carers of people living with dementia through conducting qualitative research.
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6.3.2018
Beyond using composite measures to analyze the effect of unmet supportive care needs on caregivers' anxiety and depression
Sylvie Lambert, Nicholas Hulbert-Williams, Eric Belzile, Antonio Ciampi, Afaf Girgis
This article provides an evidence-based evaluation of unmet carer needs most associated with anxiety and depression and provides a framework to guide the development of caregiver interventions.