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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Carers
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Your search has returned 227 results

  • Recognition and inclusion, Carer recognition

    1.12.2016

    Carers and social inclusion

    Trish Hill, Cathy Thomson, Margaret Raven, Melissa Wong, Sue Yeandle, Lisa Buckner, Bettina Cass

    This report explores how the social inclusion of carers can be understood, measured and improved.

    Social connectedness Report Social isolation
    View
  • Caring and society, Carer statistics

    1.10.2018

    Carers NSW 2018 carer survey summary report

    Carers NSW

    The Carers NSW 2018 survey collected data about carers’ lived experience to inform employers, service provides, government, and the broader community about the ongoing needs of carers.

    Carer support Carer recognition Employment Survey Report
    View
  • Caring and society, Carer statistics

    1.10.2014

    Carers NSW 2014 carer survey report

    Carers NSW

    The 2014 Carers Survey provides insight into the experiences of carers in NSW with the aim of improving outcomes for carers.

    Carer support Carer wellbeing Financial wellbeing Employment Survey Report
    View
  • Carer health and wellbeing, Prevention and early intervention

    1.8.2021

    Caring for others and yourself

    Carers Australia, University of Canberra

    This executive summary reports on the findings of the 2021 Carer Wellbeing Survey.

    Carer recognition Carer wellbeing Carer support Mental health Social connectedness Financial wellbeing Employment Carer burden Survey
    View
  • Recognition and inclusion, Inclusion in decision making

    1.3.2017

    Co-design of a carers strategy for New South Wales

    Helen McFarlane, Karen Turvey

    This article reports on the co-design of a statewide carers strategy in the Australian state of New South Wales.

    Open access Peer-reviewed journal article Strategy
    View
  • Income and paid work, Career development

    1.3.2012

    Employment and informal care

    Michael Fine

    This article reports on the challenges for sustaining employment and care, and presents current and future opportunities that could be a solution to this.

    Employment Informal carers Flexible work Peer-reviewed journal article Discussion paper
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    1.11.2021

    Engaging with culturally and linguistically diverse (CALD) carers: A guide

    Carers NSW

    This guide is part of a toolkit designed to help Carers NSW staff, stakeholders and partner organisations to increase the participation of CALD carers in their research, consultation and capacity building activities.

    CALD Diversity Guide
    View
  • Carer health and wellbeing, Physical health

    8.7.2016

    Exploring manual handling practices by informal carers

    Kate Thomas, Carole James, Timothy Broady

    This research explores the manual handling needs and practices of primary carers and makes recommendations regarding education and support with equipment purchasing and use.

    Chronic illness Education Health Caregivers Peer-reviewed journal article Qualitative study
    View
  • Carer health and wellbeing, Physical health

    8.3.2019

    Health of carers of young people with early psychosis

    Abner Weng Cheong Poon, Jackie Curtis, Ann Howard, Philip Ward, Julia Lappin

    This research demonstrates the importance of a biopsychosocial approach to supporting the carers of mental health service users, to improve health and wellbeing outcomes for both client and carer.

    Health Mental health carers Mental health services Children and young people Peer-reviewed journal article Survey Quantitative data
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    1.5.2011

    Indigenous carers

    Bettina Cass, BJ Newton, Kylie Valentine, Trish Hill

    This report provides an in-depth analysis of caring that examines experiences with support services for Indigenous and non-Indigenous carers. The report emphasises the need for more targeted research on numerous facets of Indigenous carer experiences and needs.

    Aboriginal and Torres Strait Islander Disability Ageing Hidden carers Report
    View
  • Carer health and wellbeing, Wellbeing programs

    1.5.2018

    Making a world of difference for carers

    Fiona Burridge

    A paper detailing local programs designed in consort with local council, service providers and the local community to recognise carers and support their health and wellbeing.

    Carer support Carer wellbeing Health Carer recognition Open access Peer-reviewed journal article Discussion paper
    View
  • Specific groups of carers, Caring for someone with dementia

    9.4.2019

    Supporting people with young-onset dementia and their family carers better

    Lee-Fay Low

    This article utilises an extended case study to explore gaps in service provider support for those with young-onset dementia and their carers.

    Dementia Alzheimer’s Respite Open access Peer-reviewed journal article Case study
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.