Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 21 results
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29.9.2024
Co-Designing Caregiver Support Groups: Rapid Review with a Non-Profit Organization
Steven Hall, Erin Leeder, Leslie Macala, Jennifer White, Mikayla Hazel
This review aims to enhance evidence base on co-designing support groups for caregivers of older adults, focusing on their involvement in the co-design process.
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31.1.2025
Moments of Care: Perceptions of Young Carers and Day-to-Day Well-Being
Melinda S. Kavanaugh, Matthew J. Zawadzki, Kayla T. Johnson, Miranda R. Boville , Healthcare
This article explores how young carers in the U.S., experience caregiving moments while supporting a family member with amyotrophic lateral sclerosis (ALS).
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2.10.2024
The challenge of identifying young carers in the US: how state laws put families at risk for separation
Andrea Faith Kalvesmaki, Katherine E.M. Miller, Emma Armstrong-Carter, Feylyn Lewis, Regina A. Shih, Elizabeth Olson, Melinda S. Kavanaugh , International Journal of care and caring
The article discusses the difficulties in identifying young carers in the US and how state laws can inadvertently put families at risk of separation.
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25.6.2019
Development of a Brief Caregiver-centric Screening Tool to Identify Risk of Depression among Caregivers of Hospitalized Older Adults
Ee-Yuee Chan, Z-X Lim, Y Y Ding, Y H Chan, W S Lim
This study focused on creating a tool to help identify caregivers of older adults in hospitals who might be at risk of depression.
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19.7.2022
Applying the RE-AIM framework to evaluate a holistic caregiver-centric hospital-to-home programme
Ee-Yuee Chan, Ling Ting Wu, Emmalene Joo Yong Ng, George Frederick Glass Jr, Robyn Hwee Teng Tan
The Carer Matters program was created to support family caregivers as they help their loved ones transition from hospital to home.
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24.3.2025
Structural stigma
Déborah Oliveira, Christine Musyimi , International Journal of care and caring
This article explores how deeply ingrained stigma in laws, policies, and systems creates unfair disadvantages for people caring for loved ones with dementia. It highlights that simply focusing on individual carers' wellbeing isn't enough.