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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Peer-reviewed journal article
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Your search has returned 163 results

  • Recognition and inclusion, Carer recognition

    1.11.2019

    Improving the identification of cancer patients’ caring relationships

    Sian White, Natalie Hart, Suzanne Lewis

    This article outlines the findings of a literature review and environmental scan of barriers to carer identification for cancer inpatients.

    Health care services Carer recognition Open access Peer-reviewed journal article
    View
  • Recognition and inclusion,

    1.3.2017

    Carer legislation, policy support initiatives and future implications

    Christina Aggar, Timothy Broady

    This report provides an overview of Australian carer legislation and policy initiatives to support carers.

    Policy Social policy Carer support Peer-reviewed journal article
    View
  • Recognition and inclusion, Carer recognition

    11.7.2019

    Claiming rights

    Kathryn Knight, Laura Davy

    This article explores the importance of meaningful recognition and inclusion of carers in their own right.

    Carer rights Carer support Financial wellbeing Disability Peer-reviewed journal article Open access
    View
  • Recognition and inclusion, Inclusion in decision making

    1.3.2017

    Co-design of a carers strategy for New South Wales

    Helen McFarlane, Karen Turvey

    This article reports on the co-design of a statewide carers strategy in the Australian state of New South Wales.

    Open access Peer-reviewed journal article Strategy
    View
  • Service systems, Service changes

    1.6.2017

    Collateral damage

    Ara Cresswell

    This journal article examines the broad sector reforms within disability and aged care and their subsequent impact on carer support.

    Disability services Social welfare Carer support Support services NDIS Peer-reviewed journal article Open access
    View
  • Caring and society, Social value of caring

    27.3.2020

    Cultures of volunteer care?

    Charlotte Overgaard

    This article explores the cultural meanings of volunteer care in a comparative analysis of Australia and Denmark, with a focus on the development of their respective welfare systems.

    Culture Social welfare Peer-reviewed journal article
    View
  • Relationships and community, Family relationships

    9.4.2019

    Engaging the person with young-onset dementia

    Imelda Gilmore

    This article shares first-hand the lived experience of Imelda Gilmore who cared for her husband with young-onset Alzheimer’s disease.

    Dementia Carer recognition Lived experience Younger onset dementia Open access Peer-reviewed journal article
    View
  • Income and paid work, Career development

    1.3.2012

    Employment and informal care

    Michael Fine

    This article reports on the challenges for sustaining employment and care, and presents current and future opportunities that could be a solution to this.

    Employment Informal carers Flexible work Peer-reviewed journal article
    View
  • Carer health and wellbeing, Physical health

    8.7.2016

    Exploring manual handling practices by informal carers

    Kate Thomas, Carole James, Timothy Broady

    This research explores the manual handling needs and practices of primary carers and makes recommendations regarding education and support with equipment purchasing and use.

    Chronic illness Education Health Caregivers Peer-reviewed journal article
    View
  • Carer health and wellbeing, Physical health

    8.3.2019

    Health of carers of young people with early psychosis

    Abner Weng Cheong Poon, Jackie Curtis, Ann Howard, Philip Ward, Julia Lappin

    This research demonstrates the importance of a biopsychosocial approach to supporting the carers of mental health service users, to improve health and wellbeing outcomes for both client and carer.

    Health Mental health carers Mental health services Children and young people Peer-reviewed journal article
    View
  • Service systems, Disability services

    1.1.2016

    Individualized funding

    Hugh Bainbridge, Mandy Fong, Timothy Broady

    This article examines the relationship between individualised funding for people with disabilities and their caregiver’s experience in paid employment.

    Autism Employment Carer support Peer-reviewed journal article
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    12.8.2018

    Interacting with providers

    Anna Green, Penelope Abbott, Patricia M. Davidson, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Michelle DiGiacomo

    New research into Aboriginal carers’ experiences of accessing services and support for their child with a disability indicates a lack of cultural awareness and the presence of racism, with the authors arguing that a community-led approach can help counter intersectional oppression.

    Aboriginal and Torres Strait Islander Children and young people Disability Health care services Qualitative data Lived experience Open access Peer-reviewed journal article
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.