Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 29 results
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3.12.2021
(How) Will it end?
Lukas Hofstaetter, Emma Kirby, Giselle Newton, Iva Strnadova, Christy E. Newman
Using a qualitative approach, this article explores the lived experiences of current and former carers, including carers’ concerns, opportunities and preferences for care endings, in order to gain insights that can be used to develop more effective pathways out of caring.
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7.12.2020
'Absent voices'
Karen Hutchinson, Frances Rapport, Geoffrey Herkes, Andrew Bleasel, Armin Nikpour, Chong Wong, Carol Ireland, Lukas Hofstaetter, Sanjyot Vagholkar, Stephanie Kain, Tayhla Ryder, Jeffrey Braithwaite
This article explores the experiences of those living with parental refractory epilepsy and their family members in order to address current evidence-gaps in research.
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1.3.2023
A systematic review comparing cardiovascular disease among informal carers and non-carers
Ameer Lambrias, Jennifer Ervin, Yamna Taouk, Tania King
This publication explores cardiovascular disease in individuals in informal caring roles. The study explored cardiovascular disease incidents in carers and non-carers, finding that overall there was no increased incidence of cardiovascular disease among carers when compared to non-carers.
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1.7.2022
Building a new life
Wendy Duggleby, Hannah M. O'Rourke, Pamela Baxter, Cheryl Nekolaichuk, Genevieve Thompson, Shelley Peacock, Sunita Ghosh, Jayna Holroyd-Leduc, Carrie McAiney, Véronique Dubé, Jennifer Swindle, Madeleine Pagnucco-Renaud, Samina Sana
This paper explored how family carers of people living with dementia that now reside in long term care deal with significant changes, and provides background on how to best support these carers
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9.9.2021
Choosing and managing aged care services from afar
Kate M. Gunn, Julie Luker, Rama Ramanathan, Xiomara Skrabal Ross, Amanda Hutchinson, Elisabeth Huynh, Ian Olver
This research aims to identify the factors that influence caregivers' decisions about the aged care providers they select for their elder relatives when caring from a distance and what they value once they have engaged a service.
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13.9.2024
Supporting Carers: Study Protocol of a Meta-Review of Psychosocial Interventions for Carers of People With Cancer
Lukas Hofstätter ,
Carers remain undersupported with a lack of dedicated, effective, evidence-based programs. We will conduct a meta-review to synthesize this evidence and determine the state of science in this field.