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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Aged care
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Your search has returned 25 results

  • Service systems, Aged care services

    14.5.2020

    Navigating the marketisation of community aged care services in rural Australia

    Suzanne Hodgkin, Pauline Savy, Samantha Clune, Anne-Marie Mahoney

    This article examines the advantages and challenges of the Consumer Directed Care programme, in which approved organisations bid for government subsidies and compete to provide community-living aged care services accessed via My Aged Care.

    Aged care Social policy Rural and regional Peer-reviewed journal article Case study
    View
  • Recognition and inclusion, Carer recognition

    1.6.2011

    Sustaining employment and caregiving

    Michael Fine

    This chapter provides a holistic analysis of the current care economy and the ways in which this impacts formal and informal carers including various gaps in services.

    Carer-inclusive workplaces Aged care Older adults Informal carers Conference
    View
  • Specific groups of carers, Caring for someone who is older

    1.7.2019

    Carers of older Australians

    Royal Commission into Aged Care Quality and Safety

    This brief paper provides a high-level overview of the role of family and friends in caring for older Australians and is based on findings from the Royal Commission into Aged Care Quality and Safety.

    Aged care Older adults Carer support Qualitative descriptive study
    View
  • Service systems, Aged care services

    6.5.2021

    Entering into a system of care

    Rachel Quigley, Michele Foster, Desley Harvey, Carolyn Ehrlich

    As Australia’s population ages, the need for informal care to assist older adults to remain living at home increases and now plays a crucial role in healthy ageing. However, existing systematic burdens create disparities in support received for carers and care recipients.

    Carer education Carer recognition Aged care Open access Peer-reviewed journal article Qualitative study
    View
  • Service systems, Respite services

    1.2.2018

    Improving access to aged residential respite care

    Carers Australia

    Residential respite is an essential element of aged care, however, many are struggling to access this service and this report investigates why.

    Aged care Respite Access to care Survey Quantitative data
    View
  • Caring and society, Carer statistics

    11.10.2020

    2020 National Carer Survey

    Carers NSW

    This summary report outlines key findings from the 2020 National Carer Survey, conducted by Carers NSW with the support of the State and Territory Carer Organisations.

    Carer support Financial stress Employment Wellbeing Health Health care services Disability services Mental health services Aged care Carer recognition Survey Summary report
    View
  • Recognition and inclusion, Carer recognition

    23.4.2018

    The marketization of care

    Michael Fine, Bob Davidson

    This article discusses the increasingly marketized systems of provision of care, using Australia as a case study to explore the transition from care as a public service, to care as a for-profit service.

    Aged care Marketization Case study Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone who is older

    17.12.2014

    Nurturing longevity

    Michael Fine

    This article describes personal assistance in advanced old age as a necessity that is created through the physical process of ageing.

    Aged care Older people Social policy Gender Peer-reviewed journal article Discussion paper
    View
  • Service systems, Aged care services

    1.8.2015

    Dementia in retirement villages

    Kylie Miskovski, Lynn Chenoweth, Brendan Moore

    This report considers how well retirement villages facilitate ageing for residents living with dementia.

    Dementia Retirement Aged care Discussion paper
    View
  • Service systems, Aged care services

    29.4.2023

    Navigating community-based aged care services from the consumer perspective

    Yuchen Xie, Myra Hamilton, Carmelle Peisah , Kaarin J Anstey , Craig Sinclair , UNSW Ageing Futures Institute; School of Psychology, University of New South Wales; Neuroscience Research Australia; Discipline of Psychiatry, University of New South Wales; Specialty of Psychiatry, University of Sydney.

    This study investigated the experiences of older adults taking a more active role in navigating the aged care system.

    Social networks Aged care Informal carers Carer burden Support-seeking behaviour Support services Scoping review
    View
  • Service systems, Aged care services

    1.6.2021

    Carers of older Australians

    Jeromey Temple, Briony Dow, Leona Kosowicz

    This study finds that among carers of older Australians, a relatively high proportion (39%) cite unmet needs in their carer role, including a need for financial support, physical assistance, emotional support, improvement in carer health and more respite care.

    Ageing Aged care Carer support Carer wellbeing Finances Support services Quantitative data
    View
  • Service systems, Aged care services

    9.9.2021

    Choosing and managing aged care services from afar

    Kate M. Gunn, Julie Luker, Rama Ramanathan, Xiomara Skrabal Ross, Amanda Hutchinson, Elisabeth Huynh, Ian Olver

    This research aims to identify the factors that influence caregivers' decisions about the aged care providers they select for their elder relatives when caring from a distance and what they value once they have engaged a service.

    Ageing Aged care Qualitative descriptive study
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.