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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Education
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Your search has returned 27 results

  • Developing skills and knowledge, Group learning

    12.3.2014

    Family perceptions of benefits and barriers to first episode psychosis carer group participation

    Julia Oxley, Hannah Bloom

    This study evaluated an open-ended family group intervention within a public adult mental health service.

    First-episode psychosis Carer education Social isolation
    View
  • Developing skills and knowledge, Group learning

    19.3.2012

    Carer psychoeducation in first-episode psychosis

    Hannah Bloom, Julia Oxley,

    This study aimed to evaluate a psychoeducation programme provided within a public adult mental health service, designed for the families of clients experiencing first-episode psychosis.

    Carer education First-episode psychosis Carer support
    View
  • Specific groups of carers, Caring for someone living with a mental illness

    1.8.2016

    Intervening early with family members during first-episode psychosis

    Simon Laxton

    This study investigated the impact of psychoeducation to families of service users experiencing a first-episode psychosis.

    Carer education Carer support First-episode psychosis
    View
  • Specific groups of carers, Young carers

    25.6.2020

    An exploration of young carers’ experiences in secondary school and their perceptions regarding their future career

    Breda Moloney, Thilo Kroll, Attracta Lafferty

    This paper explores existing research on young carers in school and their career perceptions.

    Young carers Workforce participation Education Higher education
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.9.2022

    Review of remote and online learning experiences during COVID-19

    Andrew Wade, Anne Walstab, Esther Doecke, Melissa Tham , Australian Education Research Organisation

    This report explores the effectiveness of online learning methods used during the COVID-19 pandemic to support student outcomes. The report also explores the experiences of remote learning for Australian families of students with a disability.

    Mental health Mental health carers Children and young people Education Higher education Open access
    View
  • Developing skills and knowledge, Self-advocacy

    2.9.2023

    Equal right to decide

    Justine O’Neill, Anthony Mulholland, Len Robinson, Kerry Watson, Basak Batmaz, Nicole Meikle

    This paper focuses on the inclusion of people with intellectual disabilities in research and their perspectives on human rights and decision-making in the Australian context.

    Intellectual disability Carer education Decision-making
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    Parent perspectives on School Can't: implications for health, welfare, disability and education

    Louise Rogers, Tiffany Westphal

    This report details the findings of a survey (conducted in December 2022 of 441 parents/carers who were supporting students who were experiencing school attendance difficulties.

    Children with disabilities Education Lived experience
    View
  • Planning and transitions, Planning for the future

    5.4.2023

    Higher education decision making of Australian women with caring responsibilities

    Deborah Munro, Jill Willis, Andrew Gibson, Melinda Laundon

    This paper researched how caring responsibilities may influence how Australian women make decisions about tertiary education.

    Higher education Women Carer education
    View
  • Developing skills and knowledge, Self-advocacy

    28.5.2024

    Strategies adopted by informal carers to enhance participation in daily activities for persons with dementia

    Gemma Burridge, Rosalind Bye, Carmen Amato, David Basic, Danielle Ni Chróinín, Susanna Hill, Kaitlin Howe, Karen P.Y.Liu

    This qualitative study aimed to explore the strategies carers use to assist individuals with dementia in completing daily activities.

    Mental health carers Carer stress Family caregivers Education
    View
  • Developing skills and knowledge, Caring skills

    12.9.2024

    Development and Psychometric Evaluation of the Self-Care of Informal Caregivers Inventory

    International Journal of Nursing Studies Advances

    This study aimed to develop and validate a theory-based instrument, the Self-Care of Informal Caregivers Inventory, to measure self-care behaviors in three dimensions: maintenance, monitoring, and management.

    Carer wellbeing Carer needs Carer education
    View
  • Developing skills and knowledge, Caring skills

    31.8.2024

    Preparedness for caregiving among informal caregivers of people with dementia

    Sumiyyah Zimami, Hala Darwish

    Dementia Carer education
    View
  • Developing skills and knowledge, Caring skills

    17.10.2024

    Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project

    Lukas Hofstätter ,

    Existing programs often focus on mental health but overlook practical support for cancer carers. The iCanSupport project adapted existing programs using feedback from carers and healthcare professionals, making them more relevant to carers’ specific needs.

    Information Diversity Carer education Carer needs Lived experience Cancer
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.