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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 70 results

  • Service systems, Aged care services

    6.5.2021

    Entering into a system of care

    Rachel Quigley, Michele Foster, Desley Harvey, Carolyn Ehrlich

    As Australia’s population ages, the need for informal care to assist older adults to remain living at home increases and now plays a crucial role in healthy ageing. However, existing systematic burdens create disparities in support received for carers and care recipients.

    Carer education Carer recognition Aged care Open access Peer-reviewed journal article Qualitative study
    View
  • Developing skills and knowledge, Caring skills

    18.7.2016

    Health literacy of caregivers of adult care recipients

    Eva Y. N. Yuen, Tess Knight, Lina A. Ricciardelli, Susan Burney

    This article analyses the health literacy of informal carers and how this correlates with health outcomes for care recipients.

    Health literacy Caregivers Peer-reviewed journal article Open access Scoping review Systematic review
    View
  • Specific groups of carers, Caring for someone with a brain injury

    1.1.2022

    Coproducing knowledge of the implementation of complex digital health interventions for adults with acquired brain injury and their communication partners

    Melissa Miao, Emma Power, Rachael Rietdijk, Deborah Debono, Melissa Brunner, Alexander Salomon, Ben Mcculloch, Meg Rebecca Wright, Monica Welsh, Bastian Tremblay, Caleb Rixon, Liz Williams, Rosemary Morrow, Jean-Christophe Evain, Leanne Togher

    This preliminary study provides a report on the outcome of research undertaken for the Social Brain Toolkit, a novel suite of web-based communication interventions for people with brain injury and their communication partners.

    Brain injury Carer support Peer-reviewed journal article Open access Focus group Quantitative data
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.2.2022

    Informal care in Australia during the COVID-19 pandemic

    Lukas Hofstaetter, Grace Cherrington

    While strong preventative measures helped Australia manage the COVID-19 pandemic better than most countries, many carers have been left more stressed, isolated and worse off financially.

    Informal carers COVID-19 Open access Case study Survey Consultation Report
    View
  • Specific groups of carers, Caring for someone living with a mental illness

    14.9.2020

    Family involvement to support cardiovascular self-management care for people with severe mental illness

    Sara Zabeen, Delphine Phua, Leila Mohammadi, Sharon Lawn

    This research explores what caregiving strategies work and don’t work when family members support cardiovascular self-management in people living with severe mental illness.

    Mental illness Mental health carers Cardiovascular health Peer-reviewed journal article Open access Systematic review
    View
  • Service systems, Mental health services

    17.11.2020

    Consumer perspective from people with a diagnosis of Borderline Personality Disorder (BPD) on BPD management

    Jessica Margot Proctor, Sharon Lawn, Janne McMahon

    This paper analyses how Australian consumer attitudes towards Borderline Personality Disorder (BPD) have changed overtime.

    Borderline Personality Disorder Stigma Mental health Peer-reviewed journal article Open access Accessible summary Survey
    View
  • Specific groups of carers, Caring for someone living with a mental illness

    23.8.2020

    On loneliness

    Sharon Lawn

    This is a first person account from the perspective of a family carer for someone living with mental illness, writing about their own loneliness amidst their care and busy life.

    Carer burden Mental health carers Carer wellbeing Loneliness Open access Peer-reviewed journal article Systematic review
    View
  • Specific groups of carers, Caring for someone with autism

    1.1.2017

    Understanding carers' lived experience of stigma

    Timothy Broady, Gerard J. Stoyles, Corinne Morse

    This article investigates carers’ perceptions of stigmatisation when caring for a child with autism.

    Stigma Lived experience Discrimination Autism Open access Peer-reviewed journal article Qualitative data
    View
  • Income and paid work, Support at work

    1.1.2017

    Caregiving responsibilities for a child, spouse or parent

    Hugh Bainbridge, Timothy Broady

    This study investigated how a care recipient's level of independence impacts a carer's wellbeing and career development.

    Carer-inclusive workplaces Carer wellbeing Financial wellbeing Flexible work Open access Peer-reviewed journal article Survey
    View
  • Specific groups of carers, Caring for someone at the end of life

    12.11.2020

    Carers’ experiences of end-of-life care

    Timothy Broady

    This article explores various practical and emotional challenges that family and friend carers may face when the person that they care for is receiving end-of-life care.

    End of life care Carer identity Bereavement Family caregivers Open access Peer-reviewed journal article Scoping review
    View
  • Income and paid work, Support at work

    24.2.2018

    The ageing population in Australia

    Katrina Radford, Geoffrey Chapman, Hugh Bainbridge, Beni Halvorsen

    This book chapter provides insight into Australia’s ageing population and the subsequent need to attract and retain an age-diverse workforce.

    Ageing Carer-inclusive workplaces Flexible work Open access Book Quantitative data
    View
  • Income and paid work, Support at work

    1.4.2018

    Caring for society’s elders

    Hugh Bainbridge, Katrina Radford

    This book chapter uses excerpts of lived experiences to illustrate formal and informal eldercare.

    Carer inclusion Carer-inclusive workplaces Flexible work Book Open access
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.