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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 32 results

  • Caring and society, Carer statistics

    1.10.2018

    Carers NSW 2018 carer survey summary report

    Carers NSW

    The Carers NSW 2018 survey collected data about carers’ lived experience to inform employers, service provides, government, and the broader community about the ongoing needs of carers.

    Carer support Carer recognition Employment Survey Report
    View
  • Caring and society, Carer statistics

    1.10.2014

    Carers NSW 2014 carer survey report

    Carers NSW

    The 2014 Carers Survey provides insight into the experiences of carers in NSW with the aim of improving outcomes for carers.

    Carer support Carer wellbeing Financial wellbeing Employment Survey Report
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    1.11.2021

    Engaging with culturally and linguistically diverse (CALD) carers: A guide

    Carers NSW

    This guide is part of a toolkit designed to help Carers NSW staff, stakeholders and partner organisations to increase the participation of CALD carers in their research, consultation and capacity building activities.

    CALD Diversity Guide
    View
  • Caring and society, Caring during the COVID-19 pandemic

    13.1.2022

    Coronavirus (COVID-19) and carers

    Carers NSW

    This position statement outlines some of the difficulties carers have faced throughout the COVID-19 pandemic, drawing on policy and media analysis, carer case studies, and ongoing consultation with carers and other stakeholders.

    COVID-19 Carer wellbeing Support services Financial wellbeing 5 minute read Position paper
    View
  • Recognition and inclusion, Carer recognition

    1.8.2017

    A just reward?

    Carers NSW

    This resource highlights the many disparities between paid and unpaid care.

    Carer burden Carer recognition Superannuation Respite Carer rights Review
    View
  • Caring and society, Carer statistics

    11.10.2020

    2020 National Carer Survey

    Carers NSW

    This summary report outlines key findings from the 2020 National Carer Survey, conducted by Carers NSW with the support of the State and Territory Carer Organisations.

    Carer support Financial stress Employment Wellbeing Health Health care services Disability services Mental health services Aged care Carer recognition Survey Summary report
    View
  • Caring and society, Carer statistics

    1.10.2016

    Carers NSW 2016 carer survey

    Carers NSW

    The Carers NSW Carer Survey collects information about carers which is then used to guide the direction of the organisation and to facilitate systemic advocacy for carers.

    Survey Lived experience Work and care Carer wellbeing Report
    View
  • Service systems, Respite services

    1.10.2016

    National survey of carers respite needs

    Carers NSW

    This report reveals the findings of a survey conducted by Carers NSW to gain a greater understanding of carers' respite needs and experiences of using respite.

    Respite Carer wellbeing Survey Report
    View
  • Service systems, Respite services

    1.4.2021

    Repositioning respite within consumer directed service systems

    Carers NSW

    An evidence-based report demonstrating the ways respite is an unmet carer need, and detailing opportunities for respite to be sustainably resourced.

    Wellbeing Respite Carer support Report
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    1.3.2021

    Engaging with culturally and linguistically diverse (CALD) carers: An overview

    Carers NSW

    This resource provides an overview of the Carers NSW CALD carer engagement toolkit which is intended to support more inclusive engagement with CALD carers in research.

    CALD Hidden carers Research 5 minute read
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    1.3.2021

    Engaging with culturally and linguistically diverse (CALD) carers: A checklist

    Carers NSW

    This checklist provides a practical tool to assist those in the caring space in developing a plan for CALD carer engagement.

    CALD Research 2 minute read
    View
  • Specific groups of carers, Young carers

    1.1.2020

    Engaging with young carers: A guide

    Carers NSW

    This engaging with young carers guide published by Carers NSW Australia aims to increase the involvement of young carers in research and consultation.

    Young carers Research Carer inclusion Hidden carers Guide
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.