Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 42 results
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20.5.2022
Use of parental disability trajectories to identify adolescents who are young carers
Tania L. King, Marissa Shields, Martin O’Flaherty, Anne Kavanagh, Matthew J. Spittal
This study revealed that parental disability may be an important way for service providers to better identify and subsequently support young carers.
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8.8.2024
A narrative review of community wellbeing programmes and the reported outcomes for young carers
Jennifer Bibb, Samuel McMaster, Victoria J. Palmer
This review aims to identify targeted community programmes that support the mental health and social wellbeing of young carers and their outcomes through the academic literature.
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28.10.2024
Generation Survey - What Young Australia Thinks
Ben Edwards, Kate Doery, Jessica Arnup, Intifar Chowdhury, Daniel Edwards, Kylie Hillman
The Generation Study is national study led by the Australian National University (ANU) where students are surveyed about to better understand contemporary experiences of young Australians both within the school environment and outside education. The ten-year study aims to capture trends about career interests and post-school plans.
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16.12.2024
Young adults recount their experiences as young carers in Australia
Owen Walker, Richard Moulding,
This study explores the experiences of young carers, an often-overlooked group within Australian youth.
Findings reveal that providing care during childhood or adolescence is both challenging and transformative, with lasting effects into young adulthood. -
31.1.2025
Moments of Care: Perceptions of Young Carers and Day-to-Day Well-Being
Melinda S. Kavanaugh, Matthew J. Zawadzki, Kayla T. Johnson, Miranda R. Boville , Healthcare
This article explores how young carers in the U.S., experience caregiving moments while supporting a family member with amyotrophic lateral sclerosis (ALS).