Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 49 results
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2.10.2024
The challenge of identifying young carers in the US: how state laws put families at risk for separation
Andrea Faith Kalvesmaki, Katherine E.M. Miller, Emma Armstrong-Carter, Feylyn Lewis, Regina A. Shih, Elizabeth Olson, Melinda S. Kavanaugh , International Journal of care and caring
The article discusses the difficulties in identifying young carers in the US and how state laws can inadvertently put families at risk of separation.
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18.11.2022
iSupport for Young Carers
Patricia Masterson-Algar, Kieren Egan, Greg Flynn, Gwenllian Hughes, Aimee Spector, Joshua Stott, Gill Windle
This paper highlights the creation of iSupport for Young Carers, an online training program designed to help young people caring for family members with dementia.
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5.2.2021
Intergenerational caring
Barbara D’Amen, Marco Socci, Sara Santini
The article explores the experiences of young people who care for older family members. It examines the types of tasks they take on, how caregiving affects their lives (both positively and negatively), and the ways they cope with these challenges.
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1.1.2020
The experiences of grandchildren who provide care for a grandparent with dementia
Sophie Venters, Christina J Jones , University of Surrey, Guildford, UK - Department of Psychology, Faculty of Health and Medical Sciences
This paper explores the unique experiences of grandchildren as caregivers. Through a systematic review of 12 studies, it highlights the emotional and relational impacts of caregiving, including stress, changes in family dynamics, and personal growth.
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5.4.2022
The first cross-national study of adolescent young carers aged 15–17 in six European countries
Feylyn Mercedies Lewis, Saul Becker, Thomas Parkhouse, Valentina Hlebec, Maja Mrzel, Rosita Brolin, Giulia Casu, Licia Boccaletti, Sara Santini, Barbara D’Amen, Marco Socci, Renske Hoefman, Nynke De Jong, Agnes Leu, Daniel Phelps, Elena Guggiari, Lennart Magnusson, Elizabeth Hanson
This paper presents the first cross-national study of adolescent young carers (AYCs) aged 15–17 across six European countries, Italy, the Netherlands, Slovenia, Sweden, Switzerland, and the UK, highlighting their caregiving roles, health and wellbeing, and support needs.
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5.11.2025
Care burden and outcomes in young carers during and after the COVID‑19 pandemic:
Ziyan Wang, Bing Niu
This study examines how care burden affects psychological distress and cognitive–emotional outcomes among young carers aged 15–19 in Japan during (2021) and after (2024) the COVID 19 pandemic.
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17.3.2025
Young people with caring responsibilities for persons with mental illness or substance use concerns:
An T. Vuong, Sandra Kuntsche, Mohajer Hameed, Hanan Khalil, Natalie Pearce, Rebecca Martindale, Rose Cuff, Sonia Marchionda, Scarlett Davidson, Daniel Gor, Tamara Layley, Jennifer E. Mcintosh
This rapid systematic review synthesises evidence on best practice for identifying, engaging, supporting and referring young people (≤25 years) with caring responsibilities for family or friends with mental illness or substance use concerns.