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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Wellbeing
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Your search has returned 113 results

  • Caring and society, Carer statistics

    1.10.2014

    Carers NSW 2014 carer survey report

    Carers NSW

    The 2014 Carers Survey provides insight into the experiences of carers in NSW with the aim of improving outcomes for carers.

    Carer support Carer wellbeing Financial wellbeing Employment Survey Report
    View
  • Recognition and inclusion, Carer recognition

    11.7.2019

    Claiming rights

    Kathryn Knight, Laura Davy

    This article explores the importance of meaningful recognition and inclusion of carers in their own right.

    Carer rights Carer support Financial wellbeing Disability Peer-reviewed journal article Open access
    View
  • Carer health and wellbeing, Prevention and early intervention

    1.8.2021

    Caring for others and yourself

    Carers Australia, University of Canberra

    This executive summary reports on the findings of the 2021 Carer Wellbeing Survey.

    Carer recognition Carer wellbeing Carer support Mental health Social connectedness Financial wellbeing Employment Carer burden Survey
    View
  • Income and paid work, Support at work

    1.1.2013

    Investing in care

    Myra Hamilton, Bettina Cass, Trish Hill, Cathy Thomson

    This report provides a detailed account of the ways caring responsibilities can effect workplace participation, including strategies for employers to improve carer’s ability to manage caring and paid employment.

    Carer recognition Carer-inclusive workplaces Workplace flexibility Financial wellbeing Superannuation Report
    View
  • Carer health and wellbeing, Wellbeing programs

    1.5.2018

    Making a world of difference for carers

    Fiona Burridge

    A paper detailing local programs designed in consort with local council, service providers and the local community to recognise carers and support their health and wellbeing.

    Carer support Carer wellbeing Health Carer recognition Open access Peer-reviewed journal article
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    27.8.2021

    Moral geographies of care across borders

    Elizabeth Hill, Angela Kintominas, Myra Hamilton

    This article explores the relationship between migration, social policy, and providing and receiving care in family contexts, with a particular focus on transnational grandparenting.

    Grandparents Social policy Carer support Financial wellbeing Peer-reviewed journal article
    View
  • Income and paid work, Support at work

    1.5.2019

    Book review: The sandwich generation

    Timothy Broady

    This resource provides an overview of the book ‘The sandwich generation: Caring for oneself and others at home and at work’ by Ronald J. Burke and Lisa M. Calvino.

    Employment Policy Carer wellbeing Informal carers Book review
    View
  • Caring and society, Economic value of caring

    22.12.2016

    Income support for Australian carers since 1983

    Yvette Maker, Dina Bowman

    This article reviews the history of income support for carers from the 1980s until present, finding that within this, paid work has been prioritised over care.

    Gender inequality Income support Financial wellbeing Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone with dementia

    1.10.2018

    Interventions to support carers of people with dementia

    Steering Committee for the Review of Government Service Provision

    This review considers what works to support those caring for people with Dementia and explores the effectiveness of different intervention techniques to prolong a carer's capacity to maintain care.

    Dementia Carer wellbeing Carer recognition Home care
    View
  • Service systems, Service changes

    22.12.2016

    The impact of caring on informal carers' employment, income and earnings

    Michael Bittman, Trish Hill, Cathy Thomson

    Noting the gradual shift from institutionalised forms of health and aged care into the home and community, this paper examines the effect on family and friend carers who are required to balance employment with emerging care responsibilities.

    Financial hardship Employment Financial wellbeing Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone with cancer

    2.1.2019

    An economic evaluation of a telephone outcall intervention for informal carers of cancer patients in Australia

    Scott Richards-Jones, Cathrine Mihalopoulos, Leila Heckel, Kate M. Gunn, Marcus Tan, Patricia M. Livingston

    This study looks at the economic efficacy of proactive telephone outcall intervention as a method of improving health outcomes for carers of cancer patients.

    Carer wellbeing Cancer Mental health Economic modelling Peer-reviewed journal article
    View
  • Specific groups of carers, Rural and regional carers

    3.8.2020

    The impact of caregiving on the health status of regional carers in Australia

    Marie Hutchinson, John Hurley

    This article analyses the health and wellbeing of carers, specifically looking at the associated challenges of carers in regional Australia.

    Rural and regional Health Carer wellbeing NDIS Aboriginal and Torres Strait Islander Peer-reviewed journal article
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.