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Navigating the liminal space

Trauma, transition, and connection in bereaved carers' experiences of specialist palliative care in Western Sydney

Published Date: 26.12.2018

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Theme: Specific groups of carers

Sub-theme: Caring for someone at the end of life

Palliative care Peer-reviewed journal article Carer support Carer recognition

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Specific groups of carers

Sub-theme: Caring for someone at the end of life

View Publication Palliative care Peer-reviewed journal article Carer support Carer recognition

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Navigating the liminal space

Trauma, transition, and connection in bereaved carers' experiences of specialist palliative care in Western Sydney

Published Date: 26.12.2018

  • Author/ Authors

    Kristin Bindley, Anne May, Wendy Pavlek, Suzanne Coller, Pam Kalkandis, Trish Dalgleish

  • Suggested citation (APA 7th edition)

    Bindley, K., May, A., Pavlek, W., Coller, S., Kalkandis, P., & Dalgleish, T. (2018). Navigating the liminal space: Trauma, transition, and connection in bereaved carers’ experiences of specialist palliative care in Western Sydney. Journal of Social Work in End-of-Life & Palliative Care, 14(2-3), 225–239. https://doi.org/10.1080/15524256.2018.1495140

Long Summary

This article explores the lived experience of caregiving at the end-of-life by examining the physical, spiritual, social and psychological outcomes of carers during this time. This research discovered a range of factors which may influence a carer's experience of palliative care.

Author's / Publisher's Contact Details:

https://orcid.org/ 0000-0003-1408-2484

    Key Messages for Carers


  • Provides insight into the lived experiences of carers who are caregiving at the end-of-life
  • Demonstrates how socioeconomic factors impact carer and care recipient's wellbeing during end-of-life transitions

  • Key Messages for Policy Makers


  • Advocates for ongoing training for practitioners who work in palliative care
  • Suggests greater investment in specialist sites for palliative care
  • Recommends further research into how public health systems approach palliative care

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.