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Caring and grieving in the context of social and structural inequity

Experiences of Australian carers with social welfare needs

Published Date: 26.11.2021

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Theme: Specific groups of carers

Sub-theme: Caring for someone at the end of life

Quantitative data Social welfare Palliative care Lived experience Peer-reviewed journal article

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Specific groups of carers

Sub-theme: Caring for someone at the end of life

View Publication Quantitative data Social welfare Palliative care Lived experience Peer-reviewed journal article

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Caring and grieving in the context of social and structural inequity

Experiences of Australian carers with social welfare needs

Published Date: 26.11.2021

  • Author/ Authors

    Kristin Bindley, Joanne M. Lewis, Joanne Travaglia, Michelle DiGiacomo

  • Suggested citation (APA 7th edition)

    Bindley, K., Lewis, J., Travaglia, J., & DiGiacomo, M. (2022). Caring and grieving in the context of social and structural inequity: Experiences of Australian carers with social welfare needs. Qualitative Health Research, 32(1), 64–79. https://doi.org/10.1177/10497323211046875

Long Summary

This article explores the experiences of carers who have interacted with welfare services. Using data gathered from in-depth interviews, the study focuses on end-of-life carers and grieving carers. The study finds structural vulnerability to be a recurring theme and argues that improvements to the welfare system would enhance the experiences and wellbeing of carers.

Author's / Publisher's Contact Details:

https://orcid.org/ 0000-0003-1408-2484

    Key Messages for Carers


  • Provides an example of carer involvement in policy and research
  • Discusses the experiences of end-of-life carers and grieving carers
  • Incorporates direct recommendations of carers and highlights lived experience

  • Key Messages for Policy Makers


  • Provides evidence-based research on current carer experiences with social welfare services
  • Suggests strategies to improve carer inequity
  • Offers recommendations pertaining to better recognition of carers

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.