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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 70 results

  • Carer health and wellbeing, Physical health

    1.3.2026

    Unpaid caregiving across the lifespan and health outcomes in later life

    Janecca A. Chin, I-Fen Lin ,

    Unpaid caring for loved ones is a common experience that can have long-term effects on health. This study looked at how caring builds up over time and influences health later in life, using data from 3,194 people.

    International publication Netherlands Carer Health-related quality of life Carer needs Health Longitudinal Survey Quantitative data
    View
  • Carer health and wellbeing, Wellbeing programs

    19.1.2026

    Psychosocial interventions, programs and support to promote young caregivers’ well-being

    Ilaria Chirico, Sara Trolese, Valentina Degli Esposti, Guido Veronese, Federica Cavazzoni, Rabih Chattat , Springer Nature

    This review examined psychosocial interventions, programs and supports designed to promote the wellbeing of adolescent and young adult carers. A systematic search of four databases identified 3,972 papers, with only eight studies meeting the inclusion criteria.

    Young carers Carer needs Carer recognition Systematic review
    View
  • Carer health and wellbeing, Prevention and early intervention

    19.12.2025

    What Do Older Adults with Frailty and Their Caregivers Want from Advance Care Planning Discussions?

    Robin Urquhart, Cynthia Kendell, Jessica Vickery, Elias Hirsch

    Qualitative descriptive study Advance Care Planning Older adults Canada
    View
  • Carer health and wellbeing, Mental health

    17.11.2025

    Mapping the roles of family caregivers in supporting health within the criminal justice system

    Stephanie Quon, Sarah Zhou , Danielle Brooks, Justin Kim, Laura Bennett

    This scoping review examined existing research on how family members support the health of people in prison.

    Carer inclusion Carer support Scoping review
    View
  • Carer health and wellbeing, Carer wellbeing measures

    26.10.2025

    Behavioural changes and perceived criminal offending:

    Nola Ries , Fiona Kumfor

    The study explores how behavioural and personality changes in people living with dementia may lead to situations perceived as criminal offending, as reported by carers.

    Dementia Carer wellbeing Qualitative descriptive study
    View
  • Carer health and wellbeing, Physical health

    11.10.2025

    Informal Caregivers in Transitional Hospital-to Home Care for Older People:

    Filipa Pereira , Catherine Bolduc, Pauline Melly, Virginie Renggli

    The article highlights the critical role of informal caregivers (ICs) in hospital-to-home transitions for older adults, emphasizing their contributions to patient safety, emotional support and continuity of care.

    Caregivers Older people Discussion paper
    View
  • Carer health and wellbeing, Physical health

    10.10.2025

    Carer Health-Related Quality of Life:

    Charlotte Ahmadu , Elise Evers , Johanna Lister, Frank X. Liu , Oliver Darlington

    This study reviews how carer health-related quality of life (HRQoL) has been incorporated into NICE technology appraisals from 2000 to 2023.

    Health care services Review
    View
  • Carer health and wellbeing, Wellbeing programs

    2.9.2025

    Social prescribing for informal carers

    Christina Aggar, Alessandra K. Teunisse, Michelle Bissett, Rosanne Freak-Poli, JR Baker ,

    This study looked at how social prescribing (connecting people with community services and supports), can help carers in Australia

    Support services Carer support Carer wellbeing Social welfare Quantitative data
    View
  • Carer health and wellbeing, Mental health

    15.8.2025

    Nurturing Creativity whilst Caring:

    Bryher Bowness, Samina Begum, Sarah Bicknell , Lana Samuels , Sudhir Shah , Stephanie Hess, Karen Martin, Debbie Bark , Claire Henderson, Vanessa Lawrence

    This study explores how Recovery Colleges can better support family carers’ wellbeing through a participatory action research project.

    Carer wellbeing Mental health Participatory research United Kingdom
    View
  • Carer health and wellbeing, Mental health

    30.6.2025

    Learning from Lived Experience

    Rural and regional Older adults Mental health Qualitative data Lived experience
    View
  • Carer health and wellbeing, Mental health

    7.4.2025

    Carers’ Understanding of Recovery-Oriented Practice in Mental Health Settings

    Birhanie Mekuriaw, Natalie Ann Cutler, Jo River

    This article looked at how family members and other unpaid carers understand and experience recovery-oriented practice in mental health care.

    Mental health carers Carer inclusion Carer burden Carer recognition Systematic review
    View
  • Carer health and wellbeing, Carer wellbeing measures

    17.3.2025

    Young people with caring responsibilities for persons with mental illness or substance use concerns:

    An T. Vuong, Sandra Kuntsche, Mohajer Hameed, Hanan Khalil, Natalie Pearce, Rebecca Martindale, Rose Cuff, Sonia Marchionda, Scarlett Davidson, Daniel Gor, Tamara Layley, Jennifer E. Mcintosh

    This rapid systematic review synthesises evidence on best practice for identifying, engaging, supporting and referring young people (≤25 years) with caring responsibilities for family or friends with mental illness or substance use concerns.

    Young carers Mental illness Systematic review
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.