Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 70 results
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31.1.2025
Moments of Care: Perceptions of Young Carers and Day-to-Day Well-Being
Melinda S. Kavanaugh, Matthew J. Zawadzki, Kayla T. Johnson, Miranda R. Boville , Healthcare
This article explores how young carers in the U.S., experience caregiving moments while supporting a family member with amyotrophic lateral sclerosis (ALS).
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1.11.2024
Craftivism as inquiry: holding life's threads
Chloe Watfern, Gaynor Macdonald, Michele Elliot, Lynne Stone, Imelda Gilmore, Manuel Tecson, Najla Turk, Penny Bingham, Jane Mears, Ann Dadich, Barbara Doran, Katherine Boydell, Sarah Wallace
This article shares insights regarding an arts-based research project where carers of people with dementia conveyed their experiences in cloth.
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24.10.2024
Delineating Care Recipient Burden Constructs
Maja Kuharic, Brendan Mulhern, Lisa K Sharp, Robin S Turpin, A Simon Pickard
The study developed the CARE-2B Scale to measure both the care recipient's view of their own burden (CR-SPB) and their assessment of the caregiver's burden (Proxy-CB).
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15.10.2024
Healthcare professionals’ perceptions on providing support to informal carers within stroke care
Melissa Jammal , Gregory S Kolt, Karen P. Y. Liu, Nariman Dennaoui , Emma S. George
This article explores the perspectives of healthcare professionals on supporting informal carers of stroke survivors.
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1.10.2024
Examining mental and physical distress among male informal caregivers in the US
Dexter L. Cooper, Andrew Simkus, Kristen D. Holtz, Nicole I. Wanty, Bashir Easter, Eric R. Wright
The article examines the mental and physical distress experienced by male informal caregivers in the U.S. It finds that male caregivers are more likely to report disruptions in their daily lives due to health-related issues compared to female caregivers and non-caregiving males.
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8.9.2024
Mixed-Methods Consultation Study of Family and Friends Supporting a Paramedic Experiencing Mental Ill-Health or Suicidal Distress
Sally Fitzpatrick, Caitlin Mitchell, Lyndon Bell, José Cuenca, Philippa Ditton-Phare, Kristen Vallender, Elloyse Fitzgeraldson
This study explores carers’ experiences of providing support to paramedics experiencing mental ill-health or suicidal distress, and their requirements for online support programs
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28.8.2024
A systematic review and meta-analysis of randomized controlled trials to reduce burden, stress, and strain in informal stroke caregivers
Melissa Jammal , Gregory S Kolt, Karen P. Y. Liu, Justin M Guagliano, Nariman Dennaoui , Emma S. George
This systematic review and meta-analysis examines the effectiveness of interventions aimed at reducing burden, stress, and strain among informal stroke caregivers.
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11.7.2024
The Real Face of Men’s Health
Movember Institute of men's health
The Real Face of Men's Health report illustrates the critical need for policy and practice changes in men’s health, emphasising the broader societal benefits, including substantial cost savings and improved wellbeing for families and communities.
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11.6.2024
How to support caregivers in general practice: development of the Caregiver Care Model
Anna Mygind, Sara Marie Hebsgaard Offersen, Mai-Britt Guldin, Kaj S. Christensen, Mette Kjærgaard Nielsen
The article discusses the development and pilot testing of the 'Caregiver Care Model', which aims to support caregivers in general practice by addressing emotional distress and grief.
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31.5.2024
The impact of caregiving on the roles and valued activities of stroke carers: A systematic review of qualitative studies
Melissa Jammal , Gregory S Kolt, Karen P. Y. Liu, Nariman Dennaoui , Emma S. George
This systematic review explores the experiences of informal caregivers of stroke survivors, focusing on how carers impacts their roles, activities, and overall wellbeing.