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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 70 results

  • Carer health and wellbeing, Physical health

    1.3.2023

    A systematic review comparing cardiovascular disease among informal carers and non-carers

    Ameer Lambrias, Jennifer Ervin, Yamna Taouk, Tania King

    This publication explores cardiovascular disease in individuals in informal caring roles. The study explored cardiovascular disease incidents in carers and non-carers, finding that overall there was no increased incidence of cardiovascular disease among carers when compared to non-carers.

    Physical health Cardiovascular health Peer-reviewed journal article Open access Systematic review
    View
  • Carer health and wellbeing, Mental health

    1.1.2023

    Caregiver fear of cancer recurrence

    Phyllis Butow, Kyra Webb, Louise Sharpe, Haryana Dhillon, Robert Zachariae, Nina Moller Tauber, Mia Skytte O'Toole, Joanne Shaw

    Although fear of cancer recurrence (FCR) is experienced by both cancer survivors and caregivers, less is known about caregiver FCR. This study compared survivor and caregiver FCR levels, as well as the relationship between caregiver FCR and depression/anxiety.

    Cancer Mental health carers Mental illness Systematic review Meta analysis
    View
  • Carer health and wellbeing, Mental health

    1.7.2022

    Exposure to risk and experiences of river flooding for people with disability and carers in rural Australia

    Jodie Bailie, Veronica Matthews, Ross Bailie, Michelle Villeneuve, Jo Longman

    This article explores the experiences of people with a disability and their carers during and following a flooding event.

    Flooding Natural disasters Mental health Carer wellbeing 10 minute read Open access Peer-reviewed journal article Cross-sectional study Survey
    View
  • Carer health and wellbeing, Mental health

    28.3.2022

    Caregiver burden and the associated factors in the family caregivers of patients with schizophrenia

    Leila Gholizadeh , Farnaz Rahmani, Fariborz Roshanghar, Elnaz Asghari

    This article analyses the experiences of families who care for a person with schizophrenia.

    Carer burden Carer wellbeing Family caregivers Peer-reviewed journal article Quantitative data
    View
  • Carer health and wellbeing, Mental health

    16.9.2021

    Routines of isolation?

    Emma Kirby, Georgia van Toorn, Zarnie Lwin

    This article looks at patterns of social isolation and loneliness among carers using carers of people with a glioma as the basis of the research.

    Loneliness Cancer Qualitative data Peer-reviewed journal article
    View
  • Carer health and wellbeing, Prevention and early intervention

    1.8.2021

    Caring for others and yourself

    Carers Australia, University of Canberra

    This executive summary reports on the findings of the 2021 Carer Wellbeing Survey.

    Carer recognition Carer wellbeing Carer support Mental health Social connectedness Financial wellbeing Employment Carer burden Survey
    View
  • Carer health and wellbeing, Physical health

    28.11.2020

    Scoping review of family interventions that support the physical health of caregivers

    Abner Weng Cheong Poon, Julia Lappin, Alyssa Cassidy, Jan Breckenridge

    This article looks at the uses of family-based intervention in the context of the physical health of carers through the analysis of literature.

    Mental health Physical health Literature review Family interventions Peer-reviewed journal article Scoping review
    View
  • Carer health and wellbeing, Wellbeing programs

    29.10.2020

    Promoting well-being among people with early-stage dementia and their family carers through community-based group singing

    Sophie Lee, Desmond O’Neill, Hilary Moss

    This study explored how a community-based group singing intervention impacted the wellbeing of people with early-stage dementia and their family carers.

    Dementia Carer wellbeing Peer support Peer-reviewed journal article Qualitative study
    View
  • Carer health and wellbeing, Mental health

    1.4.2020

    Lifetime active care

    Laynie Hall Pullin, Heather McKenzie

    This article uses qualitative methods to explores the experiences of life-long carers caring for people with spinal cord injuries.

    Long-term carers Physical health Carer wellbeing Spinal cord injury Peer-reviewed journal article Qualitative study
    View
  • Carer health and wellbeing, Mental health

    25.6.2019

    Development of a Brief Caregiver-centric Screening Tool to Identify Risk of Depression among Caregivers of Hospitalized Older Adults

    Ee-Yuee Chan, Z-X Lim, Y Y Ding, Y H Chan, W S Lim

    This study focused on creating a tool to help identify caregivers of older adults in hospitals who might be at risk of depression.

    International publication Carer intervention Carer support Carer inclusion Sexuality Quantitative data
    View
  • Carer health and wellbeing, Wellbeing programs

    1.6.2019

    The contribution of wellness centres to cancer care

    Kerry Haynes, Anna Ugalde, Lise Pittman, Deanne Linde, Michele Shields, Patricia Livingston

    This study assessed carer preferences regarding the ideal environment of recently established cancer wellness centres in Australia

    Carer support Wellness Rural and regional Peer-reviewed journal article Survey
    View
  • Carer health and wellbeing, Physical health

    8.3.2019

    Health of carers of young people with early psychosis

    Abner Weng Cheong Poon, Jackie Curtis, Ann Howard, Philip Ward, Julia Lappin

    This research demonstrates the importance of a biopsychosocial approach to supporting the carers of mental health service users, to improve health and wellbeing outcomes for both client and carer.

    Health Mental health carers Mental health services Children and young people Peer-reviewed journal article Survey Quantitative data
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.