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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 70 results

  • Carer health and wellbeing, Mental health

    5.2.2019

    Care-giving by people with psychotic disorders in the second Australian prevalence study of psychosis

    Abner Weng Cheong Poon, Laura Hayes, Carol Harvey

    This study looks at the prevalence of people living with psychosis who are carrying out a caregiving role.

    Caregiving Psychosis Mental health Relationships Carer support Peer-reviewed journal article Quantitative data
    View
  • Carer health and wellbeing, Mental health

    26.10.2018

    Carers’ concerns about their older persons (Carees) at risk of falling

    Seng Giap Marcus Ang, Anthony Paul O’Brien, Amanda Wilson

    This study explored the experience of carers of people who are at risk of falling and how these carers can best be supported.

    Carer burden Older people Fall concern Open access Peer-reviewed journal article Qualitative descriptive study Quantitative data
    View
  • Carer health and wellbeing, Wellbeing programs

    1.9.2018

    Carer wellbeing and supports

    Ronald Woods, Susan McCormick

    This literature review provides insights into research and debate on key priority areas within the NSW Carer Strategy 2014-2019.

    Wellbeing Health Carer support Carer recognition Literature review
    View
  • Carer health and wellbeing, Prevention and early intervention

    14.6.2018

    Health status of people who have provided informal care or support to an adult with chronic disease in the last 5 years

    Tim Luckett, Meera Agar, Michelle DiGiacomo, Caleb Ferguson, Lawrence Lam, Jane Phillips

    This article uses survey data to discuss how the health of informal carers compares to that of non-carers.

    Health Chronic illness Carer wellbeing Health conditions Peer-reviewed journal article Survey
    View
  • Carer health and wellbeing, Wellbeing programs

    1.5.2018

    Making a world of difference for carers

    Fiona Burridge

    A paper detailing local programs designed in consort with local council, service providers and the local community to recognise carers and support their health and wellbeing.

    Carer support Carer wellbeing Health Carer recognition Open access Peer-reviewed journal article Discussion paper
    View
  • Carer health and wellbeing, Mental health

    6.3.2018

    Beyond using composite measures to analyze the effect of unmet supportive care needs on caregivers' anxiety and depression

    Sylvie Lambert, Nicholas Hulbert-Williams, Eric Belzile, Antonio Ciampi, Afaf Girgis

    This article provides an evidence-based evaluation of unmet carer needs most associated with anxiety and depression and provides a framework to guide the development of caregiver interventions.

    Mental health Carer wellbeing Carer support Peer-reviewed journal article Survey
    View
  • Carer health and wellbeing, Prevention and early intervention

    15.1.2018

    Physical and psychological health of carers of young people with first episode psychosis

    Philip Ward, Celia Loneragan, Julia Lappin, Jackie Curtis, Abner Weng Cheong Poon

    This article investigates the physical and psychological impact on carers of caring for a young person with first episode psychosis.

    Carer burden Children and young people Lived experience Mental health Peer-reviewed journal article Quantitative data
    View
  • Carer health and wellbeing, Mental health

    21.12.2017

    Predictors of long‐term distress in female partners of men diagnosed with prostate cancer

    Melissa K. Hyde, Melissa Legg, Stefano Occhipinti, Stephen J. Lepore, Anna Ugalde, Leah Zajdlewicz, Kirstyn Laurie, Jeff Dunn, Suzanne K. Chambers

    This study investigated the long term stress experienced by female carers of a partner with prostate cancer.

    Longitudinal Mental illness Peer-reviewed journal article Cancer Carer burden Quantitative data
    View
  • Carer health and wellbeing, Wellbeing programs

    13.12.2017

    A self-care, problem-solving and mindfulness intervention for informal caregivers of people with motor neurone disease

    Anna Ugalde, Susan Mathers, Cathy Gluyas

    This study investigated a therapeutic group intervention for people who care for those with motor neuron disease.

    Motor Neurone Disease Carer wellbeing Wellbeing Peer-reviewed journal article Support groups Survey
    View
  • Carer health and wellbeing, Physical health

    30.10.2017

    Recovery for carers of people with psychosis

    Abner Weng Cheong Poon, Lynette Joubert, Andrew Mackinnon, Carol Harvey

    This study explores the health and wellbeing of caregivers of people with psychosis.

    Psychosis Physical health Social work Peer-reviewed journal article Longitudinal
    View
  • Carer health and wellbeing, Mental health

    1.3.2017

    The economic value of informal mental health caring in Australia:

    Sandra Diminic, Emily Hielscher, Yong Yi Lee, Meredith Harris, Jaclyn Schess, Jan Kealton, Harvey Whiteford

    The report, commissioned by Mind Australia and authored by the University of Queensland, estimates the economic value of informal mental health caring in Australia.

    Mental health carers Economic value Summary report
    View
  • Carer health and wellbeing, Bereavement

    8.8.2016

    Caregiver characteristics and bereavement needs

    Michelle DiGiacomo, Yutaka Hatano, David C. Currow, Jane Phillips, Joanne M. Lewis, Amy P. Abernethy

    This article seeks to better understand the needs and experiences of carers who have lost someone from a terminal illness.

    Grief Former carers Spousal carers Terminal illness Peer-reviewed journal article Survey
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.