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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Informal carers
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Your search has returned 27 results

  • Income and paid work, Career development

    1.3.2012

    Employment and informal care

    Michael Fine

    This article reports on the challenges for sustaining employment and care, and presents current and future opportunities that could be a solution to this.

    Employment Informal carers Flexible work Peer-reviewed journal article
    View
  • Carer health and wellbeing, Physical health

    8.7.2016

    Exploring manual handling practices by informal carers

    Kate Thomas, Carole James, Timothy Broady

    This research explores the manual handling needs and practices of primary carers and makes recommendations regarding education and support with equipment purchasing and use.

    Chronic illness Education Health Caregivers Peer-reviewed journal article
    View
  • Recognition and inclusion, Carer recognition

    1.6.2011

    Sustaining employment and caregiving

    Michael Fine

    This chapter provides a holistic analysis of the current care economy and the ways in which this impacts formal and informal carers including various gaps in services.

    Carer-inclusive workplaces Aged care Older adults Informal carers Conference
    View
  • Income and paid work, Support at work

    1.5.2019

    Book review: The sandwich generation

    Timothy Broady

    This resource provides an overview of the book ‘The sandwich generation: Caring for oneself and others at home and at work’ by Ronald J. Burke and Lisa M. Calvino.

    Employment Policy Carer wellbeing Informal carers Book review
    View
  • Planning and transitions, Changes in the caring role

    3.12.2021

    (How) Will it end?

    Lukas Hofstaetter, Emma Kirby, Giselle Newton, Iva Strnadova, Christy E. Newman

    Using a qualitative approach, this article explores the lived experiences of current and former carers, including carers’ concerns, opportunities and preferences for care endings, in order to gain insights that can be used to develop more effective pathways out of caring.

    Former carers Qualitative data Informal carers Peer-reviewed journal article Open access
    View
  • Caring and society, Economic value of caring

    1.8.2020

    The value of informal care in 2020

    Deloitte Access Economics

    This report estimates the total value of informal care provided in Australia today and examines the implications of demographic trends and projections for informal care in the future.

    Informal carers Economic modelling Social policy Quantitative data 2 minute read
    View
  • Service systems, Service changes

    22.12.2016

    The impact of caring on informal carers' employment, income and earnings

    Michael Bittman, Trish Hill, Cathy Thomson

    Noting the gradual shift from institutionalised forms of health and aged care into the home and community, this paper examines the effect on family and friend carers who are required to balance employment with emerging care responsibilities.

    Financial hardship Employment Financial wellbeing Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone living with a mental illness

    3.9.2011

    Primary caregivers’ satisfaction with clinicians’ response to them as informal carers of young people with first-episode psychosis

    Terence V McCann, Dan I Lubman, Eileen Clark

    This article aims to explore carers’ experiences of mental health nurses and other mental health clinicians in regard to how they respond to them as carers of young people with first-episode psychosis.

    Qualitative data Mental health carers First-episode psychosis Children and young people Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone with cancer

    2.1.2019

    An economic evaluation of a telephone outcall intervention for informal carers of cancer patients in Australia

    Scott Richards-Jones, Cathrine Mihalopoulos, Leila Heckel, Kate M. Gunn, Marcus Tan, Patricia M. Livingston

    This study looks at the economic efficacy of proactive telephone outcall intervention as a method of improving health outcomes for carers of cancer patients.

    Carer wellbeing Cancer Mental health Economic modelling Peer-reviewed journal article
    View
  • Caring and society, Social value of caring

    21.4.2020

    Caregiving work

    Aspa Sarris, Martha Augoustinos, Nicole Williams, Brooke Ferguson

    This article explores some of the major themes and experiences associated with caregiving.

    Carer wellbeing Informal carers Qualitative data Family caregivers Peer-reviewed journal article
    View
  • Specific groups of carers, Young carers

    22.12.2016

    Change and adaptation in families with young carers

    Janet McDonald, Kevin Dew, Jacqueline Cumming

    This study used interviews to explore the experiences of families with young carers.

    Young carers Family caregivers Qualitative data Informal carers Carer burden Family Peer-reviewed journal article
    View
  • Carer health and wellbeing, Prevention and early intervention

    10.12.2010

    Falls in older people receiving in-home informal care across Victoria

    Claudia Meyer, Briony Dow, Belinda E Bilney, Kirsten J Moore, Amanda L Bingham, Keith D. Hill

    This article explores fall risks among older people and the subsequent impacts this has on care recipients and their carers.

    Older people Informal carers Mental health Older adults Peer-reviewed journal article
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.