Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 17 results
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1.1.2019
Family-focused care span
Michelle DiGiacomo, Slavica Kochovska, Phillipa Cahil, Claudia Virdun, Jane Phillips
This chapter introduces the concept of family-focussed palliative care and explains the different components of what patients and families perceive to be the most important aspects of end-of-life care.
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26.11.2021
Caring and grieving in the context of social and structural inequity
Kristin Bindley, Joanne M. Lewis, Joanne Travaglia, Michelle DiGiacomo
This article explores the experiences and needs of carers who have interacted with welfare services, focussing on end-of-life carers and grieving carers.
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26.12.2018
Navigating the liminal space
Kristin Bindley, Anne May, Wendy Pavlek, Suzanne Coller, Pam Kalkandis, Trish Dalgleish
This article explores the lived experience of caregiving at the end-of-life by examining the physical, spiritual, social and psychological outcomes of carers during this time.