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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 21 results

  • Recognition and inclusion, Carer recognition

    1.12.2016

    Carers and social inclusion

    Trish Hill, Cathy Thomson, Margaret Raven, Melissa Wong, Sue Yeandle, Lisa Buckner, Bettina Cass

    This report explores how the social inclusion of carers can be understood, measured and improved.

    Social connectedness Report Social isolation
    View
  • Caring and society, Carer statistics

    1.10.2018

    Carers NSW 2018 carer survey summary report

    Carers NSW

    The Carers NSW 2018 survey collected data about carers’ lived experience to inform employers, service provides, government, and the broader community about the ongoing needs of carers.

    Carer support Carer recognition Employment Survey Report
    View
  • Caring and society, Carer statistics

    1.10.2014

    Carers NSW 2014 carer survey report

    Carers NSW

    The 2014 Carers Survey provides insight into the experiences of carers in NSW with the aim of improving outcomes for carers.

    Carer support Carer wellbeing Financial wellbeing Employment Survey Report
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    1.5.2011

    Indigenous carers

    Bettina Cass, BJ Newton, Kylie Valentine, Trish Hill

    This report provides an in-depth analysis of caring that examines experiences with support services for Indigenous and non-Indigenous carers. The report emphasises the need for more targeted research on numerous facets of Indigenous carer experiences and needs.

    Aboriginal and Torres Strait Islander Disability Ageing Hidden carers Report
    View
  • Income and paid work, Support at work

    1.1.2013

    Investing in care

    Myra Hamilton, Bettina Cass, Trish Hill, Cathy Thomson

    This report provides a detailed account of the ways caring responsibilities can effect workplace participation, including strategies for employers to improve carer’s ability to manage caring and paid employment.

    Carer recognition Carer-inclusive workplaces Workplace flexibility Financial wellbeing Superannuation Report
    View
  • Income and paid work, Support at work

    1.10.2021

    Modern work

    Black Dog Institute

    This paper brings together longitudinal data on Australian work and mental health.

    Mental health Work and care Report
    View
  • Income and paid work, Support at work

    13.5.2022

    Supporting staff carers in higher education

    Paula Gleeson, Priya Visvanathan, Leila Frijat, Tania Teague, Helen Taylor

    This report explores a review of practices and policy frameworks that support staff carers in the higher education sector.

    Education Higher education Carer support Report
    View
  • Income and paid work, Career development

    1.3.2021

    Supporting carers to succeed in Australian higher education

    Lisa Andrewartha, Andrew Harvey

    This report identifies qualities of carers such as resilience and selflessness as being highly sought after by universities, but also students' reluctance to identify as carers.

    Young carers Higher education Student carers Carer recognition Report
    View
  • Specific groups of carers, Young carers

    1.1.2016

    The Longitudinal Study of Australian Children (LSAC) annual statistical report 2016

    Diana Warren, Ben Edwards

    This chapter aims to shed light on how many children provide care, how much time they spend caring, the type of care they provide, the impact of a household’s socio-economic circumstances on caring, and the impact of caring on a young person’s academic achievement.

    Young carers Children and young people Quantitative data Report
    View
  • Caring and society, Carer statistics

    1.10.2016

    Carers NSW 2016 carer survey

    Carers NSW

    The Carers NSW Carer Survey collects information about carers which is then used to guide the direction of the organisation and to facilitate systemic advocacy for carers.

    Survey Lived experience Work and care Carer wellbeing Report
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.5.2020

    The COVID-19 pandemic

    Carers NSW

    This consultation report explores the impact of the COVID-19 pandemic on carers.

    COVID-19 Support services Lived experience Consultation Report
    View
  • Recognition and inclusion, Carer recognition

    1.7.2019

    Carers, we see you – UTS student consultation report

    Domenic Svejkar, Paula Gleeson, Priya Visvanathan

    This report discusses the positive and negative experiences of carers within the UTS student body along with a range of strategies to accommodate them.

    Student carers Carer support Higher education
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.