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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Social welfare
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Your search has returned 11 results

  • Service systems, Service changes

    1.6.2017

    Collateral damage

    Ara Cresswell

    This journal article examines the broad sector reforms within disability and aged care and their subsequent impact on carer support.

    Disability services Social welfare Carer support Support services NDIS Peer-reviewed journal article Open access
    View
  • Caring and society, Social value of caring

    27.3.2020

    Cultures of volunteer care?

    Charlotte Overgaard

    This article explores the cultural meanings of volunteer care in a comparative analysis of Australia and Denmark, with a focus on the development of their respective welfare systems.

    Culture Social welfare Peer-reviewed journal article International publication Qualitative study
    View
  • Planning and transitions, Changes in the caring role

    11.3.2021

    Social welfare needs of bereaved Australian carers

    Kristin Bindley, Joanne Travaglia, Joanne M. Lewis, Michelle DiGiacomo

    This qualitative study reports on insights from palliative care and welfare workers in Western Sydney about the experiences and needs of bereaved carers.

    Former carers Wellbeing Peer-reviewed journal article Palliative care Qualitative study
    View
  • Specific groups of carers, Caring for someone at the end of life

    28.10.2020

    Caring precariously

    Kristin Bindley, Joanne M. Lewis, Joanne Travaglia, Michelle DiGiacomo

    This article explores the experiences of carers who are navigating end-of-life care.

    Palliative care Social welfare Socioeconomic factors Qualitative data Family caregivers Open access Peer-reviewed journal article Qualitative descriptive study
    View
  • Specific groups of carers, Caring for someone at the end of life

    26.11.2021

    Caring and grieving in the context of social and structural inequity

    Kristin Bindley, Joanne M. Lewis, Joanne Travaglia, Michelle DiGiacomo

    This article explores the experiences and needs of carers who have interacted with welfare services, focussing on end-of-life carers and grieving carers.

    Social welfare Palliative care Lived experience Peer-reviewed journal article Qualitative study
    View
  • Caring and society, Caring during the COVID-19 pandemic

    23.9.2022

    Inequalities in caregiving strain during the COVID-19 pandemic

    Alina Schmitz, Nekehia T. Quashie, Melanie Wagner, Judith Kaschowitz

    This article explores the impact of the COVID-19 pandemic on informal carers, addressing inequalities in caregiving via a conceptual framework and review of the empirical evidence.

    COVID-19 Social policy Social welfare Gender inequality Review
    View
  • Recognition and inclusion, Carer recognition

    1.4.2023

    Bureaucracy and burden

    Kristin Bindley, Joanne M. Lewis, Michelle DiGiacomo, Joanne Travaglia

    This article analyses welfare policies including income support and housing for carers of someone with a life-limiting illness.

    Peer-reviewed journal article Social welfare Carer support Policy Qualitative study
    View
  • Specific groups of carers, Caring for someone at the end of life

    31.5.2022

    Experiences of social welfare policy in the context of caring and bereavement in Western Sydney

    Kristin Bindley

    This PhD thesis explored approaches to social welfare needs of carers during caring and bereavement.

    Bereavement Social welfare Open access Scoping review Qualitative study
    View
  • Income and paid work, Financial hardship

    1.11.2024

    Lasting impacts: The economic costs of child poverty in New South Wales

    Brad Ruting, Nathan Blane, Sara Hutchinson Tovar, Angela Jackson, Andrew Craston , NSW Council of Social Service

    This report reveals that child poverty costs New South Wales $60 billion annually.

    Social welfare Children and young people Socioeconomic factors Report
    View
  • Specific groups of carers, Caring for someone with disability

    24.2.2025

    Middle-Aged Adults' Perspectives on Caregiving for Their Siblings With Intellectual and Developmental Disabilities

    Se Kwang Hwang, Kyung Mee Kim, Chung Eun Lee

    This article examines the experiences of middle-aged adults in South Korea who care for siblings with intellectual and developmental disabilities. It highlights the influence of 'filial piety', a cultural value that encourages family-based caring.

    Disability Carer support Social welfare International publication Qualitative study Thematic analysis
    View
  • Carer health and wellbeing, Wellbeing programs

    2.9.2025

    Social prescribing for informal carers

    Christina Aggar, Alessandra K. Teunisse, Michelle Bissett, Rosanne Freak-Poli, JR Baker ,

    This study looked at how social prescribing (connecting people with community services and supports), can help carers in Australia

    Support services Carer support Carer wellbeing Social welfare Quantitative data
    View

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.