Carers Knowledge Exchange
Search
Close
Important information
Log In Subscribe for updates
  • Home
  • About
  • Research Library
  • Get Involved
  • Support for carers
  • My Research
  • Carer Hub
  • Home
  • About
  • Research Library
  • Get Involved
  • Support for carers
  • My Research
  • Carer Hub
Log In Subscribe for updates

Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

View all publications

Search for a resource

  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

Your Results

Filter my Results

Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Open access
Clear all

Your search has returned 70 results

  • Recognition and inclusion, Carer recognition

    1.11.2019

    Improving the identification of cancer patients’ caring relationships

    Sian White, Natalie Hart, Suzanne Lewis

    This article outlines the findings of a literature review and environmental scan of barriers to carer identification for cancer inpatients.

    Health care services Carer recognition Open access Peer-reviewed journal article Literature review
    View
  • Recognition and inclusion, Carer recognition

    11.7.2019

    Claiming rights

    Kathryn Knight, Laura Davy

    This article explores the importance of meaningful recognition and inclusion of carers in their own right.

    Carer rights Carer support Financial wellbeing Disability Peer-reviewed journal article Open access Discussion paper
    View
  • Recognition and inclusion, Inclusion in decision making

    1.3.2017

    Co-design of a carers strategy for New South Wales

    Helen McFarlane, Karen Turvey

    This article reports on the co-design of a statewide carers strategy in the Australian state of New South Wales.

    Open access Peer-reviewed journal article Strategy
    View
  • Service systems, Service changes

    1.6.2017

    Collateral damage

    Ara Cresswell

    This journal article examines the broad sector reforms within disability and aged care and their subsequent impact on carer support.

    Disability services Social welfare Carer support Support services NDIS Peer-reviewed journal article Open access
    View
  • Relationships and community, Family relationships

    9.4.2019

    Engaging the person with young-onset dementia

    Imelda Gilmore

    This article shares first-hand the lived experience of Imelda Gilmore who cared for her husband with young-onset Alzheimer’s disease.

    Dementia Carer recognition Lived experience Younger onset dementia Open access Peer-reviewed journal article Case study
    View
  • Service systems, Disability services

    24.9.2018

    Exploring the whole family experience living with younger onset dementia from a social model perspective

    Karen Hutchinson

    This research responds to gaps in understanding of people’s experiences of early onset dementia from a social model perspective.

    Dementia Disability Carer support Open access Thesis Qualitative data
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    12.8.2018

    Interacting with providers

    Anna Green, Penelope Abbott, Patricia M. Davidson, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Michelle DiGiacomo

    New research into Aboriginal carers’ experiences of accessing services and support for their child with a disability indicates a lack of cultural awareness and the presence of racism, with the authors arguing that a community-led approach can help counter intersectional oppression.

    Aboriginal and Torres Strait Islander Children and young people Disability Health care services Qualitative data Lived experience Open access Peer-reviewed journal article Qualitative study
    View
  • Carer health and wellbeing, Wellbeing programs

    1.5.2018

    Making a world of difference for carers

    Fiona Burridge

    A paper detailing local programs designed in consort with local council, service providers and the local community to recognise carers and support their health and wellbeing.

    Carer support Carer wellbeing Health Carer recognition Open access Peer-reviewed journal article Discussion paper
    View
  • Specific groups of carers, Caring for someone with dementia

    9.4.2019

    Supporting people with young-onset dementia and their family carers better

    Lee-Fay Low

    This article utilises an extended case study to explore gaps in service provider support for those with young-onset dementia and their carers.

    Dementia Alzheimer’s Respite Open access Peer-reviewed journal article Case study
    View
  • Service systems, Disability services

    1.11.2018

    Underpricing care

    Natasha Cortis, Fiona Macdonald, Bob Davidson, Eleanor Bentham

    This article explores the role of NDIS pricing as a mechanism to manage the market model of care, and how low prices contribute to the undervaluing of care.

    NDIS Policy Disability services Peer-reviewed journal article Open access Case study
    View
  • Service systems, Health care services

    30.1.2019

    What would I want?

    Irja Haapala, Ashley Carr, Simon Biggs

    This article draws on data from people with dementia, their carers and support service professionals to assess public health campaigns for dementia.

    Dementia Lived experience Open access Peer-reviewed journal article Qualitative study
    View
  • Planning and transitions, Changes in the caring role

    3.12.2021

    (How) Will it end?

    Lukas Hofstaetter, Emma Kirby, Giselle Newton, Iva Strnadova, Christy E. Newman

    Using a qualitative approach, this article explores the lived experiences of current and former carers, including carers’ concerns, opportunities and preferences for care endings, in order to gain insights that can be used to develop more effective pathways out of caring.

    Former carers Qualitative data Informal carers Peer-reviewed journal article Open access
    View
  1. Page 1
  2. Page 2
  3. Page 3
  4. Page 4
  5. Page 5
  6. Page 6
  • You're on page Current Page 1 of 6
    • Page 1
    • Page 2
    • Page 3
    • Page 4
    • Page 5
    • Page 6

  • About
  • Subscribe for updates
  • Support for carers

  • Research Library
  • My Research
  • Submission guidelines

  • Contact us
  • Upcoming events
  • Frequently asked questions

Follow us on social media

  • Privacy Policy
  • Disclaimer
  • Terms & conditions
The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.