Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 486 results
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24.3.2025
Structural stigma
Déborah Oliveira, Christine Musyimi , International Journal of care and caring
This article explores how deeply ingrained stigma in laws, policies, and systems creates unfair disadvantages for people caring for loved ones with dementia. It highlights that simply focusing on individual carers' wellbeing isn't enough.
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24.2.2025
Middle-Aged Adults' Perspectives on Caregiving for Their Siblings With Intellectual and Developmental Disabilities
Se Kwang Hwang, Kyung Mee Kim, Chung Eun Lee
This article examines the experiences of middle-aged adults in South Korea who care for siblings with intellectual and developmental disabilities. It highlights the influence of 'filial piety', a cultural value that encourages family-based caring.
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24.2.2025
Middle-Aged Adults' Perspectives on Caregiving for Their Siblings With Intellectual and Developmental Disabilities
Se Kwang Hwang, Kyung Mee Kim, Chung Eun Lee
This study looks at how middle-aged siblings in South Korea take on the role of caring for a brother or sister with intellectual or intellectual disabilities.
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18.11.2022
iSupport for Young Carers
Patricia Masterson-Algar, Kieren Egan, Greg Flynn, Gwenllian Hughes, Aimee Spector, Joshua Stott, Gill Windle
This paper highlights the creation of iSupport for Young Carers, an online training program designed to help young people caring for family members with dementia.
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5.2.2021
Intergenerational caring
Barbara D’Amen, Marco Socci, Sara Santini
The article explores the experiences of young people who care for older family members. It examines the types of tasks they take on, how caregiving affects their lives (both positively and negatively), and the ways they cope with these challenges.
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9.4.2025
Ageing together and the paradox of negotiating care transitions for informal disability carers in migrant multicultural communities
Nichole Georgeou,
This paper examines care transition planning and the experiences of ageing carers who provide care for family members with disability from culturally and racially marginalised migrant (CaRM) backgrounds in Western Sydney.
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17.4.2025
2024 National Carer Survey Summary Report
Carers NSW
This summary report provides an overview of national findings from the 2024 National Carer Survey regarding carers’ economic and social needs, caring relationships, carers’ experiences accessing services, and their health and wellbeing as well as diverse caring experiences.
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30.4.2025
Transportation: The Missing Link in Family Caregiver Support
National Aging and Disability Transportation Center, ARCH National Respite Network and Resource Center, ARCH National Respite Network and Resource Center
This resource provides information for caregiver support professionals about typical community transportation options and associated support services that could be used to support family caregivers in the US context.