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“It’s not a pain you can fix”

A qualitative exploration of working with vulnerably positioned current and bereaved carers across sectors of health and social care

Published Date: 12.12.2024

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Theme: Service systems

Sub-theme: Carer support services

Carer support sector Health care services Access to care Qualitative study

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


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Theme: Service systems

Sub-theme: Carer support services

View Publication Carer support sector Health care services Access to care Qualitative study

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

“It’s not a pain you can fix”

A qualitative exploration of working with vulnerably positioned current and bereaved carers across sectors of health and social care

Published Date: 12.12.2024

  • Author/ Authors

    Kristin Bindley, Joanne M. Lewis, Michelle DiGiacomo

  • Suggested citation (APA 7th edition)

    Bindley, K., Lewis, J., & DiGiacomo, M. (2024). “It’s not a pain you can fix”: A qualitative exploration of working with vulnerably positioned current and bereaved carers across sectors of health and social care. Death Studies, 1–12. https://doi.org/10.1080/07481187.2024.2437476

Long Summary

This qualitative study examines how palliative care and welfare workers experience supporting carers of people with life-limiting illnesses in socioeconomically disadvantaged areas. It highlights the emotional and structural challenges workers face, including managing distressing content, limited grief literacy, restrictive policies, and the need to find meaning to sustain their roles. The research underscores the importance of recognising the cross-sector impacts of this work and calls for initiatives to improve grief literacy, address harmful policy effects, and adopt structural strategies to promote workforce wellbeing.

Author's / Publisher's Contact Details:

https://orcid.org/ 0000-0003-1408-2484

    Key Messages for Carers


  • Support work with individuals affected by life-limiting illness involves emotional and structural challenges that can impact wellbeing.
  • Accessing services and resources that strengthen grief literacy and coping skills can enhance resilience and improve caring experiences.

  • Key Messages for Policy Makers


  • Policies should acknowledge and address the emotional and systemic impacts of supporting carers, particularly within socioeconomically disadvantaged regions.
  • Structural strategies that promote workforce wellbeing and enhance grief literacy across health and social care sectors are essential for sustainable, compassionate care.

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.