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Empowerment of young people who have a parent living with dementia

A social model perspective

Published Date: 13.11.2015

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Theme: Specific groups of carers

Sub-theme: Young carers

Young carers Children and young people Dementia Discrimination Qualitative data Peer-reviewed journal article

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Specific groups of carers

Sub-theme: Young carers

View Publication Young carers Children and young people Dementia Discrimination Qualitative data Peer-reviewed journal article

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Empowerment of young people who have a parent living with dementia

A social model perspective

Published Date: 13.11.2015

  • Author/ Authors

    Karen Hutchinson, Chris Roberts, Michele Daly, Caroline Bulsara, Susan Kurrle

  • Suggested citation (APA 7th edition)

    Hutchinson, K., Roberts, C., Daly, M., Bulsara, C., & Kurrle, S. (2016). Empowerment of young people who have a parent living with dementia: a social model perspective. International Psychogeriatrics, 28(4), 657–668. https://doi.org/10.1017/S1041610215001714

Long Summary

This article looks at the complexities of the societal support young people who care for a parent with younger onset dementia may need. This qualitative research study employed the use of interviews to gather data in which three main themes were identified: invisibility, connectivity, and empowerment. This research also discusses the importance of acknowledging the stigma associated with dementia.

    Key Messages for Carers


  • Explains the social model of disability theory
  • Provides an example of carers participating in research
  • Discusses the burdens associated with caring

  • Key Messages for Policy Makers


  • Provides an overview of the experiences of families caring for a person with younger onset dementia
  • Explains the social model of disability theory
  • Provides an outline of the lived experiences of young carers

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By the same Author

  • Exploring the whole family experience living with younger onset dementia from a social model perspective

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  • The emotional well-being of young people having a parent with younger onset dementia

    Karen Hutchinson , Chris Roberts , Susan Kurrle , Michele Daly

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  • Invisible carers

    Karen Hutchinson , Chris Roberts , Susan Kurrle

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  • Feeling invisible and ignored

    Karen Hutchinson , Chris Roberts , Pamela Roach

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.