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Invisible carers

Published Date: 1.2.2014

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Theme: Specific groups of carers

Sub-theme: Young carers

Young carers Younger onset dementia Discrimination Qualitative data Open access 10 minute read

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Specific groups of carers

Sub-theme: Young carers

View Publication Young carers Younger onset dementia Discrimination Qualitative data Open access 10 minute read

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Invisible carers

Published Date: 1.2.2014

  • Author/ Authors

    Karen Hutchinson, Chris Roberts, Susan Kurrle

  • Suggested citation (APA 7th edition)

    Hutchinson, K. Roberts, C. & Kurrle, S. (2014). Invisible Carers. Australian Journal of Dementia Care 3(1) 19-21. https://ses.library.usyd.edu.au/handle/2123/10493

Long Summary

This article looks at the experiences of young people who are involved in the care of family members with younger onset dementia. The qualitative study explores the stories of a number of young people, taking particular note of the ups and downs associated with the experience. Insight into these experiences shape their recommendations to provide better, tailored support services for young carers.

    Key Messages for Carers


  • Discusses the difficulties associated with caring for a person living with dementia
  • Provides an example of the involvement of carers in research
  • Explains some of the advantages of engaging support services

  • Key Messages for Policy Makers


  • Identifies research gaps in this specific policy area
  • Provides overview of the experiences of young carers
  • Offers recommendations for better support services

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  • Feeling invisible and ignored

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.